Kellyelise, You might have already received your answer from people with more experience. I am a part of this group because my niece has/had CML and just recently had a bone marrow transplant in Seattle and is under Dr. Druker's care. I saw this link and wondered if it would help. While on gleevac and on spycel, she did not work. She was resistant to these treatments, so BMT was her only option. Check out this site for the SSD benefits. http://library.findlaw.com/1999/Sep/1/126911.html
Good-Luck, Leslie On Feb 22, 9:33 pm, Joy <[EMAIL PROTECTED]> wrote: > Kelly, > My husband has had CML for almost 4 years now and never missed a day > at work. He has always had a good attitude and been very positive. > He walks every day and when he was diagnosed had some trouble with > rashes and a little swelling of the eyelids, some joint pain, but > those things are doing much better now. Give yourself some time and > you will find that you will improve in all areas. Just be so very > thankful that the Gleevec came along when it did.....our oncologist > would say there is not a relationship to your dad's cancer and your > CML. > > I promise you it will get better and as for the questions regarding > SS, please contact the Lukemia and Lymphoma Society and they will be > more than happy to answer your questions, anything that you need. > They are wonderful....they will help you find the chapter in your > area. > > You have been through a trauma and you will come out fine, just give > it some time. Blessings to you. We will be praying for you. Let us > know how you are doing ! > > In the fight together, > Jerry and Joy > > On Feb 19, 8:24 am, kellyelise <[EMAIL PROTECTED]> wrote: > > > I went to the ER in October for chest pain. They found an elevated > > white count. After several bumblings with my PCP, I was referred to an > > heme/onc specialist. Bloodwork Nov 14. Bone marrow bx Dec 14. > > Treatment started Feb 8 - with Gleevec. Okay, I feel terrible. My > > eyelids are swollen as well as my hands, feet, legs, everything! I am > > so tired and I hurt all over. Is this normal? Do these symptoms start > > to dissipate? I must mention that my abnormal white count was detected > > at the same time I was living with my parents helping care for my > > father with pancreatic Ca. My father died Nov 27. I was told there is > > no connection whatsoever to the pancreatic Ca and the CML. Prior to my > > parent's generation - there was absolutely no evidence of cancer in my > > family. Two uncles on maternal side with colon Ca (both uncles are in > > their 80s and faring reasonably well having beat the Ca) and then my > > father. > > > As of last Friday - I went to a psychiatrist as I was having trouble > > functioning emotionally (anxiety/depression). I can only attribute > > this to a delayed response to what I have been through the last few > > months. > > > I have a very demanding, stressful job. When I finish work, I have > > nothing left. I am completely wiped out. The psychiatrist put me on 8 > > weeks of medical leave. My disability insurance WILL NOT keep the > > wolves from the door. But, I refuse to worry about it. My employer has > > already called me and "threatened" my job. > > > My question - with a diagnosis of CML - can you qualify for SSD > > (social security disability)? I already feel as though my quality of > > life is crap as I can't even go to the grocery store without being > > totally wiped out. > > > Can anyone offer some advice, facts, reference sites? I would greatly > > appreciate it. --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
