Dear Susan, Wishing you a painless BMB and great results. Roy goes for his 2 year BMB next month :-) I am sorry about the tennis elbow but I am hoping docs can treat it and you can be pain-free soon.
Love, Anjana wife of Roy d/x Jan 2002 400mg Gleevec PCR 3.9log On Mar 22, 9:21 am, educatorsusan <[EMAIL PROTECTED]> wrote: > I believe in my gut that the pain is real. Since I am one of the > lucky ones to have had most of the side effects of Gleevec, I think > that I am pretty good at diagnosing. The problem is is that none of > us are willing to go off Gleevec to tell you definitely that Gleevec > is the culprit or not. For instance, I had a bout of sciatica...in > rare occurrences (which is me) Gleevec can cause this. Since I have > severe muscle spasms which I have pretty much under control thanks to > Dr. Druker, et. al. in this sam category is the drug reaction of RARE > sciatica...but Dr. Druker said that IF Gleevec caused it (he was not > saying it did or did not but you have to add age into the factor--- > only a ripe young age of 56 at the time) you just have to treat the > sciatica because I was not coming off the Gleevec. It is a trying > situation BUT I would rather be alive. Something new has also > occurred and that is tennis elbow...somehow, I believe that my whole > muscular structure has been affected. Now, whether this is Gleevec > related or age related, etc. WE JUST DO NOT KNOW but will continie to > treat the SYMPTOMS. So, in reality, you keep yourself alive WITH > Gleevec, REPORT the other symptoms and LIVE with the other symptoms. > It is very simple, yet annoying to every day life BUT in the long > haul---I think it is worth it! > > All my my symptoms came on very gradually. The sciatica was there but > I did not know what it was...(high pain tolerance can be a problem > here!!!) and THEN it came on SUDDENLY!!!! > > Hugs, > Susan > > Miami, Florida > dx. January 8rd, 2003 > Began Gleevec: 4/10/2003 > Ceased Gleevec: 4/21/2003 > "Rebegan" Gleevec: 4/25/2003 > Tranfusion dependent: May 2004-November 2005 > Gleevec reduced to 400mg: 8/2004 > Gleevec reduced to 300mg: 8/2005 > Gleevec reduced to 200/300 alternating days: November 7, 2006 to > present day > Still undetectable 9/20/2007 > PCR results from January 16th-undetectable and the nested test was > also undetectable!!Peripheral blood test (taken every 3 months) > BMB/BMA scheduled for March 27, 2008 (need this every two years) with > Dr. Druker. > Gleevec PK Level taken every 3 months monitored by Novartis and Dr. > Druker. --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
