You are looking for someone brave enough to thake an extended Gleevec Vacation and now you have found him.
In Dec. 2006, Gleevec helped put me in Iron Deficient Anemia and 6 months of transfusions for about every 3 weeks. Procrit is not approved by insurance companies in Missouri unless you are intravenous Chemo. I kept telling my ONC (he was a researcher at a teaching hospital when he doing his cancer specialest degree) that I thought is must be the Gleevec and I was willing to be his experiment for a Gleevec Vacation. On May 23, 2007 after several consults with Dr. K at Univ of Michigan, he finally agreed that was our best option to see if it stopped the anemia. That is the last transfusion I have had. After being closely monitered, in Nov. my QT-PCR indicated a rise in Phillies but we elected to redue the test, My ONC did give me a chose of how long 1 or 2 months, I chose 2 months to his suprise, but expained that I felt we might get better results than inbetween holidays because of the excitement of holidays and the people involved wanting to catch a few days of family time. In Jan. 2007 the QT-PCR had raised enough to end the test and I went back on Gleevec. In Feb. the lab punched in the old pcr so the results of it was negative but both Dr and I knew that wasn't accurate enough to satisfy either of us so Tues. I will repeat the QT-PCR (with a new set of #'s to verify that they are requesting the correct test). Now having said all that here is the my findings ouside of stopping the Anemia for now. Much of the Gleevec fog disappeared, Aches, Pain, Joint tightnes (swollen) disappeared, leg adema ( always about 1) was reduced. Water weight decreased at least 25% but still under 50%, swelling around the eyes decreased, ability to see clearly inproved, watery eyes disappeared, of course nasal drainage decreased and sinus pressure above the eyes decreased. After 2 months back on Gleevec all these symtoms have returned to some degree and my weight is almost 5 lbs over my highest weight before the Vacation and I did decrease about 5 lbs during the vacation (a gain of 10 lbs in 2 months. Sorry to be so long, but I know without the background it leaves many of us with unanswered questions. Wishing all a happy blest holiday. Richard H. dxd 2/03 Gleevec 3/03 PCR-U 11/03 Q-PCR-U 11/04 QT-PCR .0112 11/06 QT-PCR .0112 5/07 QT-PCR .072 11/07 PCRU 2/08 --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
