Doug I am delighted to see your post. How are you my friend? I am so happy to hear life goes on normal next week.Back to the old grindstone eh? I am happy for you. I hope you and KT are enjoying the holiday and sending my best to you. Here's to the cure.... and a bright future for you. Love
Barb On Mar 23, 12:21 pm, "Dr. Douglas B. Hanson" <[EMAIL PROTECTED]> wrote: > Richard, > > Thank you for this information. It never ceases to astonish me what a broad > range of side effects that people experience on Gleevec. I was on 600 mg of > Gleevec for nearly 4 years with no side effects whatsoever at least none > that my body notified me of. The same was true of Sprycel, but I was only on > that for a couple of months. I was beginning to think that there was > something wrong with me. In fact I felt that way when I was first diagnosed > with CML. My body told me nothing and then I go in for a regular exam and my > doc tells me my spleen has migrated down to my groin! What a shock that was. > And now I am reluctant to believe anything my body tells me, which is still > not much. > > I am now 9 months out from a SCT. Other than chronic tiredness everything > has gone extremely well. I did pick up a mild case of conjunctivitis a while > back, but I went about my business not believing that either. > > If I can't trust my body to tell me when something is wrong, who can I > trust?! > > After 9 months of recovery, I am ready for the real world again. I am back > on payroll next week and am looking forward to new challenges. > > Doug 56 > Dx CML 11/2003 > 600 mg Gleevec 11/2003-1/2007 > 70 mg Sprycel 1/2007-4/2007 > MUD 6/19/2007 > > > > ?-----Original Message----- > > ?From: [email protected] [mailto:[EMAIL PROTECTED] On > ?Behalf Of Richard H > ?Sent: Sunday, March 23, 2008 1:45 PM > ?To: CMLHope > ?Subject: [CMLHope] Re: PAIN > ? > ? > ?You are looking for someone brave enough to thake an extended Gleevec > ?Vacation and now you have found him. > ? > ?In Dec. 2006, Gleevec helped put me in Iron Deficient Anemia and 6 > ?months of transfusions for about every 3 weeks. Procrit is not > ?approved by insurance companies in Missouri unless you are intravenous > ?Chemo. I kept telling my ONC (he was a researcher at a teaching > ?hospital when he doing his cancer specialest degree) that I thought is > ?must be the Gleevec and I was willing to be his experiment for a > ?Gleevec Vacation. On May 23, 2007 after several consults with Dr. K > ?at Univ of Michigan, he finally agreed that was our best option to see > ?if it stopped the anemia. That is the last transfusion I have had. > ?After being closely monitered, in Nov. my QT-PCR indicated a rise in > ?Phillies but we elected to redue the test, My ONC did give me a chose > ?of how long 1 or 2 months, I chose 2 months to his suprise, but > ?expained that I felt we might get better results than inbetween > ?holidays because of the excitement of holidays and the people involved > ?wanting to catch a few days of family time. In Jan. 2007 the QT-PCR > ?had raised enough to end the test and I went back on Gleevec. In Feb. > ?the lab punched in the old pcr so the results of it was negative but > ?both Dr and I knew that wasn't accurate enough to satisfy either of us > ?so Tues. I will repeat the QT-PCR (with a new set of #'s to verify > ?that they are requesting the correct test). Now having said all that > ?here is the my findings ouside of stopping the Anemia for now. > ? > ?Much of the Gleevec fog disappeared, Aches, Pain, Joint tightnes > ?(swollen) disappeared, leg adema ( always about 1) was reduced. Water > ?weight decreased at least 25% but still under 50%, swelling around the > ?eyes decreased, ability to see clearly inproved, watery eyes > ?disappeared, of course nasal drainage decreased and sinus pressure > ?above the eyes decreased. After 2 months back on Gleevec all these > ?symtoms have returned to some degree and my weight is almost 5 lbs > ?over my highest weight before the Vacation and I did decrease about 5 > ?lbs during the vacation (a gain of 10 lbs in 2 months. Sorry to be so > ?long, but I know without the background it leaves many of us with > ?unanswered questions. Wishing all a happy blest holiday. > ? > ?Richard H. > ?dxd 2/03 > ?Gleevec 3/03 > ?PCR-U 11/03 > ?Q-PCR-U 11/04 > ?QT-PCR .0112 11/06 > ?QT-PCR .0112 5/07 > ?QT-PCR .072 11/07 > ?PCRU 2/08 > ? > ?- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
