Hi All
I haven't been paying attention to the list for a while.
I guess when things are going ok you forget to take part.
My husband Joe is the one with CML dx 1996 has gone
from hydrea, gleevec to sprycel. Now he may have a problem. Oxygen
level was 83 so he is now on oxygen
3.5 all day.
I e-mail Dr Druker since we were in touch when Joe
went off gleevec.Joe wasn't able to go back on Gleevec
it didn't work any more, Dr Druker suggest a trial for
Bristol Meyer Squid in Dallas Tx we were lucky they took Joe.  But he
wasn't able to take 140mg of Sprycel
soo he had to leave the trial.
Today he is on 5mg of Sprycel and has congestive heart
failure.
So Dr Druker suggested nilotinib ( Tasigna) any one on it?? Know
anything about it???? I would  like any info.
Mary
Joe 120 on Zavie's first list
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