Hi Mary I was put on Tasigna about 1 month ago, and now my Oncologist has pulled me off for the next two weeks. I suffered from headaches and a little nausea at first, but that went away. I'm having problems with muscle pain now and it's bad, so this is why he pulled me off. He wants to see if it's the medication or something else. I have had congestive heart failure in the past and my Cardiologist is watching this medication two. I had 3 E.K.G.'s at first, but they came back okay. I think I'll probably have another when I go back on (if I do) I know that there aren't many people on it. Barb in Arizona has some information on it, but I find that I am better off not reading all of the side effects at first. I read everything that came with the drug, plus what the doctor gave me, so know I'm lucky to have had as few side effects as I've had. It scared me to start it, with my heart problems, but so far, I didn't have any problems in that area. I was put on 800 mg. a day to start. Have a feeling he'll lower the dosage when I see him in two weeks. I hope that I've helped you and hope all goes well for your husband. Keep in touch and let me know what you both decide.
Millie ----- Original Message ----- From: "sassy" <[EMAIL PROTECTED]> To: "CMLHope" <[email protected]> Sent: Wednesday, July 16, 2008 4:33 PM Subject: [CMLHope] New Drug > > Hi All > I haven't been paying attention to the list for a while. > I guess when things are going ok you forget to take part. > My husband Joe is the one with CML dx 1996 has gone > from hydrea, gleevec to sprycel. Now he may have a problem. Oxygen > level was 83 so he is now on oxygen > 3.5 all day. > I e-mail Dr Druker since we were in touch when Joe > went off gleevec.Joe wasn't able to go back on Gleevec > it didn't work any more, Dr Druker suggest a trial for > Bristol Meyer Squid in Dallas Tx we were lucky they took Joe. But he > wasn't able to take 140mg of Sprycel > soo he had to leave the trial. > Today he is on 5mg of Sprycel and has congestive heart > failure. > So Dr Druker suggested nilotinib ( Tasigna) any one on it?? Know > anything about it???? I would like any info. > Mary > Joe 120 on Zavie's first list > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
