Thank you I did a little looking about this drug. I must say I was surprised that DR. Druker suggested it. Sometimes we are better off not knowing all the side effects. Good luck & God Bless Mary
On Jul 16, 4:50 pm, "C.M. Houtz" <[EMAIL PROTECTED]> wrote: > Hi Mary > > I was put on Tasigna about 1 month ago, and now my Oncologist has pulled me > off for the next two weeks. I suffered from headaches and a little nausea > at first, but that went away. I'm having problems with muscle pain now and > it's bad, so this is why he pulled me off. He wants to see if it's the > medication or something else. I have had congestive heart failure in the > past and my Cardiologist is watching this medication two. I had 3 E.K.G.'s > at first, but they came back okay. I think I'll probably have another when > I go back on (if I do) I know that there aren't many people on it. Barb in > Arizona has some information on it, but I find that I am better off not > reading all of the side effects at first. I read everything that came with > the drug, plus what the doctor gave me, so know I'm lucky to have had as few > side effects as I've had. It scared me to start it, with my heart problems, > but so far, I didn't have any problems in that area. I was put on 800 mg. a > day to start. Have a feeling he'll lower the dosage when I see him in two > weeks. I hope that I've helped you and hope all goes well for your husband. > Keep in touch and let me know what you both decide. > > Millie > > > > ----- Original Message ----- > From: "sassy" <[EMAIL PROTECTED]> > To: "CMLHope" <[email protected]> > Sent: Wednesday, July 16, 2008 4:33 PM > Subject: [CMLHope] New Drug > > > Hi All > > I haven't been paying attention to the list for a while. > > I guess when things are going ok you forget to take part. > > My husband Joe is the one with CML dx 1996 has gone > > from hydrea, gleevec to sprycel. Now he may have a problem. Oxygen > > level was 83 so he is now on oxygen > > 3.5 all day. > > I e-mail Dr Druker since we were in touch when Joe > > went off gleevec.Joe wasn't able to go back on Gleevec > > it didn't work any more, Dr Druker suggest a trial for > > Bristol Meyer Squid in Dallas Tx we were lucky they took Joe. But he > > wasn't able to take 140mg of Sprycel > > soo he had to leave the trial. > > Today he is on 5mg of Sprycel and has congestive heart > > failure. > > So Dr Druker suggested nilotinib ( Tasigna) any one on it?? Know > > anything about it???? I would like any info. > > Mary > > Joe 120 on Zavie's first list- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
