Hi Skip, thanks for the update and so sorry you are having so much trouble with the meds. I started on Tasigna about 2 months ago, and it hasn't been fun. First my hemg dropped to 7.4, had to have 2 pints of blood. Then my ANC went too low, and I had to go off the drug for 2 weeks. Now, I learn yesterday that I have to be transfused again SUN. No Fun at all. But the good news is that the drug got rid of the blast! I'm going to hang in there with it as long as I can. I'm on the full dose of Tasigna, which is 800 mgs. I pray that you will find something that will work. Blessings, Jeanie<3 In a message dated 12/3/2008 11:18:27 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes:
Hello all once again, just an update on my ongoing battle with my CML and the drugs to combat it. After my last hospital stay, I was told not to use dasatinib any more. They had to tap me and remove all the pleural infusion build up caused by dasatinib. They removed 8.5 500ML bottles of liquid,over a threee week period. After another 3 weeks my doc told me we would go back to Nilotinib, at a reduced rate (400MG once day). In six days to the hour, my liver enzymes shot through the roof. Once again I am off any of the nibs, Imatinib, Nilotinib and Dasatinib. I am still a bit sick and pain in the back but it is less that yesterday, so I imagine I will wait until my doc comes back from ASH to find out where we go from here. I am beginning to wonder if there is any of these drugs I can tolerate. I guess I am paying the piper for living so long with CML. Have a great day all SkipD dx'ed 30++++ years ago. **************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp&icid=aolcom40vanity&ncid=emlcntaolcom00000010) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
