Jeanie I am so glad the blas is gone, I felt if they lowered the dose after they tapped my lung I could have stayed on Tasigna (Dasatinib) accoring to the article in the CML Source. I guess my doc knows better. Oh well the ride is long and I am not too bad off, see many others on these groups that seem to be struggling. I know what to expect as I have had just about all the side effects these so called wonder drugs have. but those just getting started must be nearly out of their minds I feel so sorry for them. I am a lucky man I am still on the green side.
be safe Jeanie Skip D --- On Wed, 12/3/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> > Subject: [CMLHope] Re: update on me > To: [email protected] > Date: Wednesday, December 3, 2008, 12:50 PM > Hi Skip, thanks for the update and so sorry you are having > so much trouble > with the meds. > I started on Tasigna about 2 months ago, and it hasn't > been fun. > First my hemg dropped to 7.4, had to have 2 pints of > blood. Then my ANC > went too low, and I had to go off the drug for 2 weeks. > Now, I learn yesterday > that I have to be transfused again SUN. No Fun at all. > But the good news is that the drug got rid of the blast! > I'm going to hang in there with it as long as I can. > I'm on the full dose of Tasigna, which is 800 mgs. > I pray that you will find something that will work. > Blessings, > Jeanie<3 > > In a message dated 12/3/2008 11:18:27 A.M. Eastern Standard > Time, > [EMAIL PROTECTED] writes: > > Hello all once again, > just an update on my ongoing battle with my CML and the > drugs to combat it. > After my last hospital stay, I was told not to use > dasatinib any more. > They had to tap me and remove all the pleural infusion > build up caused by > dasatinib. > They removed 8.5 500ML bottles of liquid,over a threee > week period. After > another 3 weeks my doc told me we would go back to > Nilotinib, at a reduced > rate (400MG once day). In six days to the hour, my liver > enzymes shot through > the roof. Once again I am off any of the nibs, Imatinib, > Nilotinib and > Dasatinib. I am still a bit sick and pain in the back but > it is less that > yesterday, so I imagine I will wait until my doc comes > back from ASH to find out > where we go from here. I am beginning to wonder if there > is any of these drugs I > can tolerate. I guess I am paying the piper for living so > long with CML. > Have a great day all > > SkipD > dx'ed 30++++ years ago. > > > > > **************Make your life easier with all your friends, > email, and > favorite sites in one place. Try it now. > (http://www.aol.com/?optin=new-dp&icid=aolcom40vanity&ncid=emlcntaolcom00000010) > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
