Hi Skip, All our lives we have heard the phrase the practice of medicine. Well here we are being practiced on! I'm very happy to hear you say that you are experiencing a good quality of life thorugh it all! Congrats and may you continue along the good path you are on now! Jim
--- On Tue, 12/30/08, Skip Duffie <[email protected]> wrote: From: Skip Duffie <[email protected]> Subject: [CMLHope] What now? To: [email protected], "cmlhope" <[email protected]> Date: Tuesday, December 30, 2008, 6:48 AM I see that a few of you have inquired about what is next for me. First I was without Internet and TV for over a week due to large storm, so I am sorry for delay in answering. My doctor said that he has to do something, so he put me back on Nilotinib and his plan is to start me at a very low dose. He started with 200mg a day and after two weeks he upped it to 400mg a day split 200 in the morning and 200 at night, we then will try in 3 weeks up once more to 600?. I have to have full blood work every Monday and CBC Thursday, they are keeping a very close watch on my liver. I guess he is trying his best by tinkering with the dose. Most of the other drugs I failed due to side effects. It is a trial and error situation, but on the other hand I feel ok and still have a good quality of life. I wish to thank all those who have e-mailed me and others who posted on these group with good wishes. I wish that Lottie was back up and around I miss her emails Thanks all SkipD dx'ed 30++++ years ago --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
