Hey Skip I think we discussed this before but the low dose of nilotinib has maintained my PCRU for a year. I take 400 mg once a day in the morning. So far, so good. I do still have side effects but nothing like gleevec. Good luck and I hope it continues. I forget, besides elevated liver levels, what was your CML status? Barb
On Dec 30, 5:48 am, Skip Duffie <[email protected]> wrote: > I see that a few of you have inquired about what is next for me. First I was > without Internet and TV for over a week due to large storm, so I am sorry for > delay in answering. > > My doctor said that he has to do something, so he put me back on Nilotinib > and his plan is to start me at a very low dose. He started with 200mg a day > and after two weeks he upped it to 400mg a day split 200 in the morning and > 200 at night, we then will try in 3 weeks up once more to 600?. I have to > have full blood work every Monday and CBC Thursday, they are keeping a very > close watch on my liver. I guess he is trying his best by tinkering with the > dose. Most of the other drugs I failed due to side effects. It is a trial > and error situation, but on the other hand I feel ok and still have a good > quality of life. > > I wish to thank all those who have e-mailed me and others who posted on these > group with good wishes. I wish that Lottie was back up and around I miss her > emails > > Thanks all > SkipD > dx'ed 30++++ years ago --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
