I see that a few of you have inquired about what is next for me. First I was
without Internet and TV for over a week due to large storm, so I am sorry for
delay in answering.
My doctor said that he has to do something, so he put me back on Nilotinib and
his plan is to start me at a very low dose. He started with 200mg a day and
after two weeks he upped it to 400mg a day split 200 in the morning and 200 at
night, we then will try in 3 weeks up once more to 600?. I have to have full
blood work every Monday and CBC Thursday, they are keeping a very close watch
on my liver. I guess he is trying his best by tinkering with the dose. Most of
the other drugs I failed due to side effects. It is a trial and error
situation, but on the other hand I feel ok and still have a good quality of
life.
I wish to thank all those who have e-mailed me and others who posted on these
group with good wishes. I wish that Lottie was back up and around I miss her
emails
Thanks all
SkipD
dx'ed 30++++ years ago
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