Hi Lenda, Glad to meet someone on Sprycel--how long have you been on it? I have been on it for about 3 months; just had my BMA and doctor said some sign of the CML is there but not bad. I am hopeful it will put me in full remission. I love going to Moffitt; you get your blood done, and then see the doctor. He knows just where you are in your blood counts and that's great. I started off with 150 mgs of Sprycel, and had the headaches also. They say if you are prone to migrains, which I am, the headaches are worse. I would feel like my sinus was burning, and it felt like a cold coming on. He said I could take Tylenol for it. They come and go now and I was reduced to 100 mgs daily due to counts dropping fast. Good luck, Jeanie<3 In a message dated 10/19/2009 9:25:26 P.M. Eastern Daylight Time, [email protected] writes:
Yes I was originally on 140mg of Sprycel and had excruciating headaches...so bad I threatened the doctor that I would stop the meds if I did not get some relief! He reduced me to 100 mg and I am much better. I'm in complete remission, my bcr-abl comes back 0.001 every four months. I do have a lot of skin issues (sun sensitivity, dark spots, rashes) I also gained 30 pounds the first 1 1/2 months I started on Sprycel. I have a lot of pain in my hip, lower back and leg, but don't know if it's the Sprycel or something else. But I don't have any stomach issues like I had with Gleevec or any swelling of the eyes, but the fluid retention is everywhere else!!! But sometimes you have to take the good and the bad!! I believe I was on Sprycel for two to three months before my blood counts were back to normal. I wish you the best and hope Sprycel does well for you too!!! Lenda ----- Original Message ----- From: [email protected] To: [email protected] Sent: Monday, October 19, 2009 4:17:44 PM GMT -06:00 US/Canada Central Subject: [CMLHope] Re: Gleevec I"m on Sprycel also In a message dated 10/18/2009 10:25:02 A.M. Eastern Daylight Time, [email protected] writes: Hi lenda, I am on 100 mgs of Sprycel also. I failed on Gleevec and Tasigna. 2 years--That is great! I sure hope it keeps working for me--I have been on it for about 3 months now. I'm doing good on it. Did you have any problems on Sprycel in the beginning? Thanks, Jeanie<3 was on Glevec for 1/1/2 years then it stopped working for me. I have now been on 100mg of Sprycel for over 2 years now and doing great. I would not let my doctor rush you into a BMT unless all other avenues have been exhausted. Just my opinion. Good luck and many blessings... Lenda Coleman --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
