Hi karen, Tom and Lenda, Sounds like we are all in the same boat; let's get to the shore together hehe. I never had the cytogenic remission either on Gleevec or TAsi, but my blood stayed good for 5 years on Gleevec and then just went out of control. I think Sprycel is going to do it for us this time. I am very hopeful. I had to take 150 mgs in the beginning and my counts did drop but not as bad as when I was on Tasi. I don't think wine will hurt you as long as you are not doing a lot of pain meds. Take your meds in the morning and you could do a glass of wine in the evening. i don't take anything with my Sprycel in the morning but my breakfast. Good luck, Jeanie<3 In a message dated 10/22/2009 11:41:56 P.M. Eastern Daylight Time, [email protected] writes:
Hi Tom, Lenda and Jeanie, It is nice to find others in the same boat. I was on Gleevec for 7 months. I got to blood remission, but the cytogenic remission never happened. The Gleevec basically was not working in the bone marrow. I was diagnosed in November 2008, had two bone marrow biopsy's in 7- months time and had no change in the marrow. So I went for a second opinion and that doc started me on Sprycel 100mg, but my counts dropped so quickly. It was scary. I also had bad headaches for about 10-days on the Sprycel, however the counts just did not recover, so I was taken off all meds to allow my counts to go up. On the 100mg, I also had significant fatigue. Well I had a 28-day break and my counts recovered nicely and just 5-days ago, I was started on 50mg of Sprycel. I have very slight headaches at night and I'm a little tired, but that is about it right now. I go for bloodwork tomorrow, so that will be the real test. Hopefully the counts are not taking a nosedive again. As far as the alcohol question, I have had a casual drink once in a while on both Gleevec and Sprycel...but that's about it. I didn't have any reactions. Please keep posting because these websites are what keep me sain. All the information that gets posted is helpful one way or another. Take care all. Karen --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
