Marty...wow! what a journey! So glad you are well! It gives us all hope to see how well you are doing! Compared to what you and Zavie went through, I have only had speed bumps! Have a great new year! Tom 1292 Tom Dunham, BD:8/1941 Zavie's list 1292 DX CML 12-23-2008 MDA Protocol: Tasigna-400mg; 2xday-1/09 Q PCR bone@ 0.17 7/09 Acute Pancreatitis-7/5/09 Stopped Tasigna-7/13/09 Q PCRU blood-7-29-09 ! Started Gleevec-400mg/day-7/31/09 Developed rash ~ 8/19/09 Rash treated with Steriods..improvement Rash worsens~9/22/09 Stopped Gleevec-9/28/09 Restarted Gleevec @300mg/day-10/8/09 Stopped Gleevec-10/13/09-toxic rash\ Q PCR bone-0.05 Started Sprycel @ 100mg/day-10/20/09 In a message dated 12/31/2009 4:25:23 P.M. Eastern Standard Time, [email protected] writes:
Hi Tom (1292) and all the best to you as well. You are also fighting my war, and your winning the battle. just as I have. Anyone that beats the crap out of CML is my Alli, and you just continue hanging in there my friend. Marty Gartenberg Diagnosed in May of 1988 First day of Total Body Radiation May 10 1989 First entered Luminous Air Flow Chamber May 10 1990 Chemotherapy started May 17 1990 Actual Bone Marrow Transplant May 21St 1990 On my actual 45Th birthday. Remained in LAF Chamber for seven months. Released in December 1990 Spiked high fever one week later. Back in LAF for one month. Released from LAF January 1991 Readmitted to LAF June 1991 for Phenomena Released from LAF two weeks later. Considered cured May 1995 Still CML free as of today. If you notice I fought this battle and thank GOD I won. I just wanted everyone to see that no matter what your going through GOD has a plan for you. We may not understand it but it is still why I am alive today. I did not have the "luxury" of having Gleevec or any other drug that might have helped me. Almost everyone on this list does have something that is now available to them to stop this horrible disease in it's tracks, and please be very thankful. Sure it is OK to complain about side effects or anything else that you might be going through, but the bottom line here is that you are still here to complain. I wish that you keep on complaining for the next hundred years. I love each and every one of you because I believe in my heart that you are all very special people in that you are dealing with something that couldn't be dealt with in my time other then going through a bone marrow transplant. You ask Zavie about the old times that three of us (Me, Zavie and Jeff, we call ourselves The Three Musketeers) went through different things to help with our CML. Now, today the three of us are living "normal" lives, each in our own way. You, yes each and every one of you are now my heroes. You keep on hanging in there, and may you all have a very healthy and happy New Year. Marty Gartenberg On Thu, Dec 31, 2009 at 10:50 AM, <[email protected]_ (mailto:[email protected]) > wrote: Marty.....great new year's wish! All the best...Tom in KY In a message dated 12/30/2009 9:12:14 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Hi Tom and Zavie, And a great club it is. I just happen to have the distinction of being number one on Zavie's zero club list. My wish for this coming New Year is that everyone that has CML, AML, ALL, or any of the other diseases gets onto Zavies zero list. I wish everyone a very healthy and happy New Year. Marty Gartenberg On Thu, Dec 24, 2009 at 4:47 PM, Zavie Miller <[email protected]_ (mailto:[email protected]) > wrote: Hi Tom, All you need to join the Zero Club is to reach CCR. 0/20 does it for a BMB and 0.1 does it for a PCR test, So, 0.05 puts you into the club. YAHOOO!!! YIPPEEE!!! Number 1292 in the Zero Club Zavie On Sat, Dec 19, 2009 at 1:16 PM, <[email protected]_ (mailto:[email protected]) > wrote: Zavie....hope all is well with you! What does it take to get in the Zero club? My last bone scan had a PCR of 0.05 after about 9 months. Good talking to you the other night! Tom in KY In a message dated 12/18/2009 4:22:24 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope _ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
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