Zavie....hope all is well with you! What does it take to get in the Zero club? My last bone scan had a PCR of 0.05 after about 9 months. Good talking to you the other night! Tom in KY In a message dated 12/18/2009 4:22:24 P.M. Eastern Standard Time, [email protected] writes:
Hi Tina, No you are not selfish. My best advice to you is to get to a doctor who has experience in dealing with pregnancy. As much as you love your present doctor, it is evident that she is not experienced in these matters. She should be able to tell you that there are meds you can take (Interferon) while pregnant that won't harm the fetus. How many CML patients has she had who she guided through a successful pregnancy? Read the book 'My (So-Called) Normal Life". She chronicled her journey with CML on Glamour Magazine. Erin stopped Gleevec and had a baby boy. She is now having her second child (due in January). Her doctor is Dr. Michal Mauro at OHSU. He was my clinical trial doctor back in 2001 and a very experienced CML doctor. I would urge you to at least have a consult with someone of his experience. Also, when you say that you are in remission, what exactly do you mean. Are you at CCR or better? If you are then you qualify for a number in the Zero Club. Good luck, Zavie On Mon, Dec 14, 2009 at 10:00 AM, tinac21 <[email protected]_ (mailto:[email protected]) > wrote: My husband and I are wanting to extend our family again next year possibly. I have discussed it with my doctor, but I am getting the impression she isnt fond of going threw with another pregnancy. With my now 3 year old, things went very smoothly. Although he wasnt planned, I spend 8 months off gleevec, and my wbc count stayed the same until the last few months. At the highest it was around 40,000. at the time of conception I was not in remission, so my counts were not at a normal point to begin with. I feel like being 23yrs old now, I should be able to live my life how I would have wanted to with or without CML, but part of my feels as though I should be thankful enough to have experinced this once, and thats enough. I've always wanted two children, and it has never mattered to me boy or girl. Am I selfish for wanting more children? Does anyone know of medication that can be taken threw out the pregnancy thats isnt harmful to the unborn child? I think if I could find something to take during the pregnancy it might help easy my doctors concerns. I dont want another doctor, as she is the best doctor I could ask for, but I think on a more personal level she isnt fond of the whole pregnancy mainly because I might become gain a resitance to the medication or might not respond the same again. Plus its taken almost 2 years to get a response this time around with sprycel. As of this month I am finally in "remmission" like state with normal counts. Tina -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- Zavie Miller (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: [email protected]_ (mailto:[email protected]) Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 Yahoo ID: zaviem -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
