Hi Pat: Nope, not crazy. I had the same headaches on Gleevec as well as Sprycel - actually I think the Gleevec headaches were worse. Most people have the bad headaches for about 2 weeks, then they start to fade. I get headaches still, but Advil clears them up. Also, you might start getting drippy nose, sinus problems, etc. I found loratadine (Claritin) to be very effective and it also alleviates the headaches (sinus headaches). My side effects aren't squat compared to Gleevec! I no longer look like a bug-eyed bullfrog! Make sure you drink a lot of water, avoid soda as much as possible. I drink ginger ale mixed with juice sometimes. Unfortunately, I am addicted to Coke (the beverage)....but I limit it to 1 to 2 glasses a day, SMALL glasses. I think it contributes to the headaches and water retention. Hang in there!
Blessings, Kelly On Mar 16, 3:08 am, "[email protected]" <[email protected]> wrote: > Congratulations Kelly, I wish you continuous success. I hope the side > effects ease up for you. I haven't been on the sprycel long and the > only things bothering me is I am having severe headaches....I have > headaches anyway, but this is a totally different kind of headache. It > hurts at the very top of my hairline, about half way down my > forehead...and it's unlike any other headache, I guess that sounds > crazy. I hope if this is a side effect...it fades away in a hurry. > Were you and everyone else told to take it in the morning? > Take care....I'm happy for you. > Love,Peace,Hope & Prayers, Pat > > On Mar 11, 10:19 pm, kellyelise <[email protected]> wrote: > > > > > Hi Ya'll: > > > Went to my onc today - lab work showing undetectable!!! On the Sprycel > > 100 mg qd. I did tell the onc that when I feel like I'm getting > > "toxic" (headaches, overall malaise, extreme fatigue, no appetite, > > etc.), I stop the Sprycel for one or two days, then I resume the > > Sprycel. He told me that was ok and to just keep doing whatever I'm > > doing because it is working. I asked about "log reduction" and I know > > it has been explained to me a dozen times but I don't absorb things > > well.....Anyway, I am way beyond that - more than a 5 log reduction. > > Yipppeeee!! > > > Thank the good Lord for Sprycel!!! > > Kelly > > > On Mar 10, 5:53 pm, [email protected] wrote: > > > > Hi I wish I could lower my dose--I'm on 100 mgs a day,- Hide quoted text - > > - Show quoted text - -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
