My Gleevac Side effects following 15 months treatment were eye bleeds at 15 
months.  Gleevac stopped.  Eye bleeds stopped.

--- On Tue, 3/16/10, kellyelise <[email protected]> wrote:


From: kellyelise <[email protected]>
Subject: [CMLHope] Re: Pat's Update
To: "CMLHope" <[email protected]>
Date: Tuesday, March 16, 2010, 4:08 PM


Hi Pat:

Nope, not crazy. I had the same headaches on Gleevec as well as
Sprycel - actually I think the Gleevec headaches were worse. Most
people have the bad headaches for about 2 weeks, then they start to
fade. I get headaches still, but Advil clears them up. Also, you might
start getting drippy nose, sinus problems, etc. I found loratadine
(Claritin) to be very effective and it also alleviates the headaches
(sinus headaches). My side effects aren't squat compared to Gleevec! I
no longer look like a bug-eyed bullfrog! Make sure you drink a lot of
water, avoid soda as much as possible. I drink ginger ale mixed with
juice sometimes. Unfortunately, I am addicted to Coke (the
beverage)....but I limit it to 1 to 2 glasses a day, SMALL glasses. I
think it contributes to the headaches and water retention. Hang in
there!

Blessings,
Kelly

On Mar 16, 3:08 am, "[email protected]" <[email protected]>
wrote:
> Congratulations Kelly, I wish you continuous success. I hope the side
> effects ease up for you. I haven't been on the sprycel long and the
> only things bothering me is I am having severe headaches....I have
> headaches anyway, but this is a totally different kind of headache. It
> hurts at the very top of my hairline, about half way down my
> forehead...and it's unlike any other headache, I guess that sounds
> crazy. I hope if this is a side effect...it fades away in a hurry.
> Were you and everyone else told to take it in the morning?
> Take care....I'm happy for you.
> Love,Peace,Hope &  Prayers, Pat
>
> On Mar 11, 10:19 pm, kellyelise <[email protected]> wrote:
>
>
>
> > Hi Ya'll:
>
> > Went to my onc today - lab work showing undetectable!!! On the Sprycel
> > 100 mg qd. I did tell the onc that when I feel like I'm getting
> > "toxic" (headaches, overall malaise, extreme fatigue, no appetite,
> > etc.), I stop the Sprycel for one or two days, then I resume the
> > Sprycel. He told me that was ok and to just keep doing whatever I'm
> > doing because it is working. I asked about "log reduction" and I know
> > it has been explained to me a dozen times but I don't absorb things
> > well.....Anyway, I am way beyond that - more than a 5 log reduction.
> > Yipppeeee!!
>
> > Thank the good Lord for Sprycel!!!
> > Kelly
>
> > On Mar 10, 5:53 pm, [email protected] wrote:
>
> > > Hi I wish I could lower my dose--I'm on 100 mgs a day,- Hide quoted text -
>
> - Show quoted text -

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