My son felt joint/muscle/bone pain in the first months he was taking gleevec. But after the PCR level went down to less than 10% he started to not feeling those pain. He used pain killer.
Yes, he felt tired as well. But now he is ok. keep going Ricardo. On Thu, Mar 25, 2010 at 3:01 PM, Thomas Chang <[email protected]>wrote: > Again, Thanks for all your support. > > Can you share experiences in the Gleevec side effects in your kids? > > For Emily, there's occasional nausea after taking Gleevec, which we > have been managing by giving her the pill right before falling asleep > to sleep it off. > Emily is feeling join/muscle pain. While the pain during day-time is > more tolerable, it's bothering her more in the evening hours when > she's more tired. > > Also since she took Gleevec 2-3 weeks ago, her energy level dropped by > at least by 30-40%. She gets tired easily, and prefers sitting down > rather than jumping up and down all the time before. > > We are hoping some of these side effects are short-term, but hey, if > Gleevec works consistently, we can tolerate all these side effects. > > Best wishes to all! > > Thomas > > On Mar 24, 6:03 pm, Ricardo Gadelha <[email protected]> wrote: > > Thomas, > > Good night from Brazil. > > When my son was diagnosed 3 years ago I was simply devastated. But now I > see > > that is ok to live with CML and my son is doing very well - normal life. > > Emily will be very well soon. > > take care, > > Ricardo. > > > > On Tue, Mar 23, 2010 at 4:37 AM, Thomas Chang <[email protected] > >wrote: > > > > > > > > > Thank you all for your great support... > > > > > After being Gleevec for 2 weeks, Emily's WBC dropped to 17000 in > > > today's checkup, from 120k. We are more optimistic now. Doctors told > > > us that the effectiveness of Gleevec will only be proven in future > > > milestones in bone marrow aspirations but this looks like a good > > > start. We are very thankful for the prayers answered. > > > > > Gleevec side-effects are so far tolerable. The nausea has reduced in > > > frequency and join pain seems to have reduced, fortunately. > > > > > Again, Thanks to all! > > > > > Thomas > > > > > On Mar 20, 1:56 am, "[email protected]" <[email protected]> > > > wrote: > > > > Thomas, so sorry to hear your young daughter has been diagnosed with > > > > CML. Cancer/Leukemia is scary words to hear. My heartfelt sympathy > > > > goes out to your daughter and family. Gleevec is a miracle > drug....and > > > > if anyone is destined to get cancer or leukemia....she has the good > > > > kind. You made a good decision by joining this group....if there are > > > > things you may not fully understand from her doctor, there is someone > > > > here who is going through what you are, and they can answer your > > > > questions or direct you to someone who can. Try to be comfort to your > > > > daughter, and if you are terrified, try not to display your fears in > > > > front of her and keep a positive attitude for her and yourself. Most > > > > children deal with things much better than we adults do. If you need > > > > someone to talk to, the group is here and you are welcome to email me > > > > privately if you just need someone to talk to. Adding your daughter > > > > and family to my prayer list. I hope all goes well with her > treatment, > > > > it may be rough in the beginning with just dealing with it, or side > > > > effects from the Gleevec, but it's a great possibility she will do > > > > well. > > > > Love,Peace,Hope & Prayers, Pat > > > > On Mar 14, 12:48 pm, Thomas Chang <[email protected]> wrote: > > > > > > > Hi All, > > > > > My daughter 6 years old was diagnosed with CML in chronic phase 8 > days > > > > > ago. > > > > > Dr. recommended Gleevec, which started 5 days ago, but there's no > > > > > change in the white blood count. > > > > > > > Any pediatric case in how soon Gleevec started to take effect would > be > > > > > helpful. > > > > > > > Thanks, > > > > > Thomas > > > > > -- > > > [CMLHope] > > > A support group ofhttp://cmlhope.com > > > ------------------------------------------------- > > > > > You received this message because you are subscribed to the Google > Groups > > > "CMLHope" group. > > > To post to this group, send email to [email protected] > > > To unsubscribe from this group, send email to > > > [email protected] > > > For more options, visit this group at > > >http://groups.google.com/group/CMLHope > > > > > To unsubscribe from this group, send email to cmlhope+ > > > unsubscribegooglegroups.com or reply to this email with the words > "REMOVE > > > ME" as the subject. > > > > -- > > Ricardo > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > To unsubscribe from this group, send email to cmlhope+ > unsubscribegooglegroups.com or reply to this email with the words "REMOVE > ME" as the subject. > -- Ricardo -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope To unsubscribe, reply using "remove me" as the subject.
