Thanks for responding! I am sorry to hear about your husband, my best friend's mother is going through the same thing. My prayers are with you and your husband. I have been taking my sprycel 50mgs around 8pm at night so I don't have to deal with the terrible headache and then I wake up with my heart racing out of my chest, pulse rate up to 120 beats a minute, then I go into a panic because I feel like I can't breathe. I also have emphysema so don't know for sure if it is interfering with that or not. I am terrified. I was Gleeevec and I have never reached remission but will be a 6 year survivor in Nov. I didn't know the sprycel works with stomach acid so I guess I am doomed as far as the GERD. It is awful in itself. Thanks for your input. Love,peace, hope & prayers, Pat
On Sep 25, 7:55 am, "John Kuptz" <[email protected]> wrote: > Hi Pat, > I am on Sprycel too. When I first started I had the racing heart also. It > drove me crazy especially at night when all was quiet and that is what I was > focusing on. My primary dr. put me on a b/p medicine antenol that slows the > heart beat down. I haven't had it since.. I also went through the panic > attacks. I would wake up in a cold sweat and that has subsided greatly. As > far as the gerd, I have acid reflux but that is a problem with Sprycel as > the sprycel works with the stomach acid. I can only take mylanta or tums > and that has to be two hours before or after taking the sprycel. I never > had the headache but I am on a extremely low dose thank goodness. I have > had excellent results and most of the time my pcr is undetectable. My dr > still does the prc test every three months. Hang in there it will get > better. I say that tongue in cheek as my husband just had surgery for lung > cancer and we are knee deep in chemo and radiation. I see all these people > so sick getting chemo and I am so grateful for the meds I am on. Your > doctor will get it straightened out. It took mine awhile to get all kinks > out and on track with the sprycel. > Best of luck to you. > Carolyn > > ----- Original Message ----- > From: <[email protected]> > To: "CMLHope" <[email protected]> > Sent: Friday, September 24, 2010 10:50 PM > Subject: [CMLHope] Having trouble with sprycel > > > I've run into some new problems with sprycel so I need some advice. I > > haven't mentioned it to my doctor yet but the sprycel is making my > > chest hurt, heart racing out of my chest, go into a panic attack upon > > getting up each day. I know this is doing it. Last week, when I went > > to get my sprycel filled, they didn't have any in stock, they ordered > > it but then my insurance said I needed prior authorization so this > > took 3 days...anyway, I didn't have any sprycel to take for about 5 > > days and when I didn't take it, I had none of those symptoms. Has > > anyone else had this problem? They are still giving me the bad > > headaches, too. I started seeing a new primary doctor, don't think he > > is going to please me either, but anyway, since i was so severely > > depressed, he would not treat me for it and has me seeing a > > psychiatrist. He started me on cymbalta 30mgs first week, 2nd week > > 60mgs. They make me so nauseous, also give me a headache. The side > > effects are horrendous, and some of the side effects are the same as > > the sprycel. Keep in mind I do have emphysema. I just don't think the > > sprycel is going to work out for me , nor the cymbalta. I have gerd > > and the sprycel and cymbalta seem to be keeping it flared up. I am > > taking both at night, one to avoid the nausea and the other to sleep > > thru the headache which I still wake up with one.Please share your > > input with me. I am terrified...if I can't take sprycel, I don't know > > what i am going to do...the tasgina is definitely not an option. > > Love,peace, hope n prayers, Pat > > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > >http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
