I am also 7yr survivor in March, (happy anniversary to me) lol. I was once on Gleevec for around 2yrs the cost per 30days around $8,000 a month. In 2006 I switched to sprycel and just pick up last months script. Pharmacist told me it was about $7,900 closer to $8,000 for a 30day supply. I usually keep the cost to myself, however I can see why a persons jaw would drop when they hear that figure for some tiny little pills. My response, You cant put a price on my life. As far as I am concerned, I am blessed to be here writing this right now at this very moment. I wonder what the going price is for tasgnia (think I spelled it right)?
Have a great monday, Tina On Thu, Jan 6, 2011 at 11:22 AM, Kelley Kimbrough <[email protected] > wrote: > 7year survivor myself, I cannot believe they have raised patend to 2019. > What's up with that? > > On Wed, Jan 5, 2011 at 8:49 AM, <[email protected]> wrote: > >> Amen!! Tom >> >> In a message dated 1/4/2011 11:15:11 A.M. Eastern Standard Time, >> [email protected] writes: >> >> Iblaine, >> >> I couldn't agree more! I have people act shocked when I tell them the >> cost of continuing my life, but like you, I explain the millions of dollars >> it takes to develop these drugs plus getting through the approval >> requirements is extraordthey have raised the patteinary and if there wasn't >> a profit motive at the end, there wouldn't have been any reason for >> corporations to develop them. If you need any better example of capitalism >> at work, I can't find it. >> On Jan 4, 2011, at 9:46 AM, [email protected] wrote: >> >> I'm on Sprycel 100mg daily. If my husband did not have insurance, it >> would cost us $`17,534 every 90 days. Yes that was not a typo, Seventeen >> Thousand! There is a ton of research that goes into these drugs and >> millions of dollars to fund it. I feel very blessed just to have an option >> of the oral drug verses what had to be tolerated before these drugs were >> discovered. They have come a long way in the last 11-12 years! Our life >> expectancy after diagnosis back then was only about five years! I'm happy >> to be alive and kickin still. >> Lenda >> ----- Original Message ----- >> From: "judy" <[email protected]> >> To: [email protected] >> Cc: "jam 92842" <[email protected]> >> Sent: Tuesday, January 4, 2011 1:09:28 AM >> Subject: Re: [CMLHope] Re: Price of Gleevec keeps going up >> >> I guess they don't want to pay the 3 months because they figure we might >> not last that long and they would be out the money. the gleevec here is >> almost 5,ooo a month. I have help paying the copay from a cancer group but >> I still have to have the perscription coverage to start with and being on >> S.S. Its hard but better than none at all. Good luck all CML people we all >> need it. JUDY >> >> >> ------------------------------ >> *From:* "[email protected]" <[email protected]> >> *To:* [email protected] >> *Sent:* Sun, January 2, 2011 4:37:33 PM >> *Subject:* Re: [CMLHope] Re: Price of Gleevec keeps going up >> >> A very simple answer as to why the insurance company won't let you buy >> from another pharmacy: The insurance co owns the pharmacy that they make us >> purchase the gleevec from. >> >> In a message dated 1/2/2011 4:03:43 P.M. Eastern Standard Time, >> [email protected] writes: >> >> Dawn: >> >> When I was getting mine from Walmart Pharmacy, it was right around >> 2800$ to 2900$ for a 30 day supply. That was just about two years >> ago. I received a letter from Anthem B/C stating I was going to have >> to start mail ordering it from this place out of Indianapolis called >> Px Specialty Solutions or start paying a percentage out of my >> pocket. So, I called the Pharmacy people to begin mail ordering. The >> woman said, "maybe we can get you a 3-month's supply at a time". I >> thought, well that would be nice. Well, she called back later and >> said my insurance would not ok a 90 day supply. (no reason given) The >> first time I saw a price they included.....I told my husband it was >> much higher than what it was when I got it from Walmart, so I do not >> know why my insurance decided to do this. It made no sense to me then >> and it still doesn't after two years of mail order. I do have to say >> though, these people have been very good to me and helpful. And, so >> far Anthem has not balked at paying for the Gleevec. Course, my >> husband informed me what it's costing each month for my coverage. >> It's awful, but what does one do but pay it if they can. I did >> wonder though after seeing what you pay.....if they get a cheaper rate >> for 90 days supply verses 30 days? If so, one would think an >> insurance company would go that route in order to save money. >> >> Thanks everyone.....it does bring up questions, doesn't it? >> >> Keep on fighting with every breath you have, >> >> Suzieq >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
