How long before you can say 34 years? I will began year 8 the end of Feb. While I keep reading about the rising costs of health care, I wonder why after 10 years of production that the costs of medicine ought to be leveling off and the start up costs should be at a level rate. That is the old cost accountant talking. I am thankful that they have found something that will control our CML. I know that it now serves other types of cancer as well but I would think the expanded sale of the original formula so why is this testing raising the overall cost so fast? So glad you and I are both still here to ask questions.
Richard H. On Jan 9, 7:11 pm, Skip Duffie <[email protected]> wrote: > Good evening all, hope everyone had a wonderful new years. > I am 33 year survivor and the cost of keeping me alive in 2009, > was 143,000 for the year, not counting the many many > transfusions of Hgb and Plts, the trips to the hospitals etc > Single handed I am putting Canada's Health care in the red. > My military pension insurance plan is crying ouch. > > The only thing I wish I could do is to thank all those who donate > platelets and Hgb every week for me, I get single (Apheresis) donor platlets > and it takes around four hours for someone to give them. How do you thank > people for that.. I use to give blood but it was just to get the afternoon > off. > > SkipD 33year survivor CML > > > > ________________________________ > From: Kelley Kimbrough <[email protected]> > To: [email protected] > Sent: Thu, January 6, 2011 12:22:29 PM > Subject: Re: [CMLHope] Re: Price of Gleevec keeps going up > > 7year survivor myself, I cannot believe they have raised patend to 2019. > What's > up with that? > > On Wed, Jan 5, 2011 at 8:49 AM, <[email protected]> wrote: > > Amen!! Tom > > > > > > > > > > >In a message dated 1/4/2011 11:15:11 A.M. Eastern Standard Time, > >[email protected] writes: > >Iblaine, > > >> I couldn't agree more! I have people act shocked when I tell them the cost > >>of > >>continuing my life, but like you, I explain the millions of dollars it > >>takes to > >>develop these drugs plus getting through the approval requirements is > >>extraordthey have raised the patteinary and if there wasn't a profit motive > >>at > >>the end, there wouldn't have been any reason for corporations to develop > >>them. > >>If you need any better example of capitalism at work, I can't find it. > > >>On Jan 4, 2011, at 9:46 AM, [email protected] wrote: > > >>I'm on Sprycel 100mg daily. If my husband did not have insurance, it would > >>cost > >>us $`17,534 every 90 days. Yes that was not a typo, Seventeen Thousand! > >>There > >>is a ton of research that goes into these drugs and millions of dollars to > >>fund > >>it. I feel very blessed just to have an option of the oral drug verses > >>what had > >>to be tolerated before these drugs were discovered. They have come a long > >>way > >>in the last 11-12 years! Our life expectancy after diagnosis back then was > >>only > >>about five years! I'm happy to be alive and kickin still. > >>>Lenda > >>>----- Original Message ----- > >>>From: "judy" <[email protected]> > >>>To: [email protected] > >>>Cc: "jam 92842" <[email protected]> > >>>Sent: Tuesday, January 4, 2011 1:09:28 AM > >>>Subject: Re: [CMLHope] Re: Price of Gleevec keeps going up > > >>>I guess they don't want to pay the 3 months because they figure we might > >>>not > >>>last that long and they would be out the money. the gleevec here is almost > >>>5,ooo a month. I have help paying the copay from a cancer group but I > >>>still > >>>have to have the perscription coverage to start with and being on S.S. > >>>Its > >>>hard but better than none at all. Good luck all CML people we all need > >>>it. > >>>JUDY > > ________________________________ > From: "[email protected]" <[email protected]> > > > > > > > > >>>To: [email protected] > >>>Sent: Sun, January 2, 2011 4:37:33 PM > >>>Subject: Re: [CMLHope] Re: Price of Gleevec keeps going up > > >>>A very simple answer as to why the insurance company won't let you buy from > >>>another pharmacy: The insurance co owns the pharmacy that they make us > >>>purchase > >>>the gleevec from. > > >>>In a message dated 1/2/2011 4:03:43 P.M. Eastern Standard > >>>Time, [email protected] writes: > >>>Dawn: > > >>>>When I was getting mine from Walmart Pharmacy, it was right around > >>>>2800$ to 2900$ for a 30 day supply. That was just about two years > >>>>ago. I received a letter from Anthem B/C stating I was going to have > >>>>to start mail ordering it from this place out of Indianapolis called > >>>>Px Specialty Solutions or start paying a percentage out of my > >>>>pocket. So, I called the Pharmacy people to begin mail ordering. The > >>>>woman said, "maybe we can get you a 3-month's supply at a time". I > >>>>thought, well that would be nice. Well, she called back later and > >>>>said my insurance would not ok a 90 day supply. (no reason given) The > >>>>first time I saw a price they included.....I told my husband it was > >>>>much higher than what it was when I got it from Walmart, so I do not > >>>>know why my insurance decided to do this. It made no sense to me then > >>>>and it still doesn't after two years of mail order. I do have to say > >>>>though, these people have been very good to me and helpful. And, so > >>>>far Anthem has not balked at paying for the Gleevec. Course, my > >>>>husband informed me what it's costing each month for my coverage. > >>>>It's awful, but what does one do but pay it if they can. I did > >>>>wonder though after seeing what you pay.....if they get a cheaper rate > >>>>for 90 days supply verses 30 days? If so, one would think an > >>>>insurance company would go that route in order to save money. > > >>>>Thanks everyone.....it does bring up questions, doesn't it? > > >>>>Keep on fighting with every breath you have, > > >>>>Suzieq > > >>>>-- > >>>>[CMLHope] > >>>>A support group of http://cmlhope.com > >>>>------------------------------------------------- > > >>>>You received this message because you are subscribed to the Google Groups > >>>>"CMLHope" group. > >>>>To post to this group, send email to [email protected] > >>>>To unsubscribe from this group, send email > >>>>to [email protected] > >>>>For more options, visit this group > >>>>at http://groups.google.com/group/CMLHope > >>>>-- > >>>[CMLHope] > >>>A support group of http://cmlhope.com > >>>------------------------------------------------- > >>> > >>>You received this message because you are subscribed to the Google Groups > >>>"CMLHope" group. > >>>To post to this group, send email to [email protected] > >>>To unsubscribe from this group, send email > >>>to [email protected] > >>>For more options, visit this group > >>>at http://groups.google.com/group/CMLHope > >>>-- > >>>[CMLHope] > >>>A support group of http://cmlhope.com > >>>------------------------------------------------- > >>> > >>>You received this message because you are subscribed to the Google Groups > >>>"CMLHope" group. > >>>To post to this group, send email to [email protected] > >>>To unsubscribe from this group, send email > >>>to [email protected] > >>>For more options, visit this group > >at http://groups.google.com/group/CMLHope-- > >>>[CMLHope] > >>>A support group of http://cmlhope.com > >>>------------------------------------------------- > >>> > >>>You received this message because you are subscribed to the Google Groups > >>>"CMLHope" group. > >>>To post to this group, send email to [email protected] > >>>To unsubscribe from this group, send email > >>>to [email protected] > >>>For more options, visit this group > >>>at http://groups.google.com/group/CMLHope > > >>-- > >>[CMLHope] > >>A support group ofhttp://cmlhope.com > >>------------------------------------------------- > >> > >>You received this message because you are subscribed to the Google Groups > >>"CMLHope" group. > >>To post to this group, send email to [email protected] > >>To unsubscribe from this group, send email to > >>[email protected] > >>For more options, visit this group athttp://groups.google.com/group/CMLHope > >-- > >[CMLHope] > >A support group ofhttp://cmlhope.com > >------------------------------------------------- > > > >You received this message because you are subscribed to the Google Groups > >"CMLHope" group. > >To post to this group, send email to [email protected] > >To unsubscribe from this group, send email to > >[email protected] > >For more options, visit this group athttp://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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