I've been off Gleevac for about 1.5 years now, due to eye bleeds.   My 
Philadelphia Chromosone indicator (level) was/is 0.07 up from 6 months ago when 
it was 0.012.  In a month they will recheck and then decide if I need to be on 
anything.




________________________________
From: Victoria Reiter <[email protected]>
To: [email protected]
Sent: Sun, March 20, 2011 9:29:56 AM
Subject: [CMLHope] Eye bleeds

I've been on Gleevec for eleven years and began to have occasional eye bleeds 
about six years ago.  This lasted for a short time and then stopped.  Now I'll 
have perhaps one eye bleed a year and count myself lucky.  I was unaware that a 
few people were having bleeding in the brain and am not certain if this is from 
Gleevec or from Tasigna.  It's unspoken but true that everyone who takes a new 
medication is a test subject and that every side effect that can occur does not 
necessarily show up while a drug is in first and second stage testing.  But we 
have to give kudos to Dr. Druker for having more or less solved our problem by 
attempting to block the molecular expression of it.  His approach is being used 
on other cancers: I believe there's even a new melanoma drug that uses the same 
technique. -- 

[CMLHope]
A support group of http://cmlhope.com
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