April 19th was the 12th anniversary of the day I entered the STI 571 trial at UCLA, and over the 12 years I've been on treatment with Gleevec, I've had scores of eye bleeds. Sometimes they come in clusters where I'll have several right in a row, and sometimes I go for many months without one. Dr. Charles Sawyers, my doctor and the co-investigator in the STI 571 study at UCLA, Dr. Ron Paquette, my current doctor who was involved with the studies for Sprycel, and my opthalmologist all have said these eye bleeds are benign. Sawyers and Paquette are considered CML experts.These eye bleeds look horrible, but they go away in a few days. Some of mine are small in the corner of my eye, and some have covered the entire white of my eye in deep crimson. (I get a lot of sympathy for those!) Sometimes I can tell I'm getting one because I feel a little pin prick in my eye, and sometimes I can't feel a thing.
None of these doctors have said anything about them being dangerous or leading to brain bleeds. This is just the information that I have. Virginia from Claremont, CA -----Original Message----- From: Marcie <[email protected]> To: [email protected] Sent: Sun, May 8, 2011 9:38 pm Subject: [CMLHope] Eye Bleeds I've been on Gleevec since March '09, should let Zavie know that I can be his newest member of the zero club. But tonight I got an eye bleed. Doesn't hurt but looks awful. Anyone have any info on what to expect? Thanks, dear friends. Even my wonderful doctor says every now and then "go check with your group". Marcie in Baltimore Sent from my iPhone --[CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
