Hi just received my lab works and everything is O.K.. I'm low on some of the tests buts it's like that all the time. I'm good to go for another 3 months. greenie In a message dated 8/3/2011 10:00:13 A.M. Pacific Daylight Time, [email protected] writes:
Hi Draze, Unfortunatly, I would like to welcome you to "the world of CML" Fortunatly CML is now much more treatable then in years past. Yes, as you mention it is cancer, however, if you have to have cancer then this is probably the one to have because of all the new drugs and treatments that are available now. Your WBC being at 309 at your diagnosis wss quite high, but not as high as mine when it was more then 23+ years ago. Mine was 486,000. Here is a website describing what PCR is and since you are newly diagnoised don't be disappointed if yours is not even close to PCRU. Sometimes it takes many morths even years to get to PCRU but that is what is really good about all of these drugs they usually help with your disease and let you live your life. Your WBC going from 309 to 64 is a very good sign of this and your even able to go back to work. Check out what PCR is, at: _http://www.dna.gov/audiences/victim/know/interpreting_ (http://www.dna.gov/audiences/victim/know/interpreting) By the way, there is also another CML group you can post on. It is [email protected]_ (mailto:[email protected]) Both this, and that one are very good for information and there are a lot of very friendly people on both of these lists. If you should have any more questions or concerns just get on and post them. By the way where do you live? Now a little about myself. I had an Allogeniec Bone Marrow transplant more then 22+ years ago for CML. I am still here, and so are you. That is the way I look at it... I wish you good luck, and whenever I end an email I always end it with a number, the number is 18's which means life. Stay in touch. 18's to you! Marty On Wed, Aug 3, 2011 at 4:31 AM, Draz <[email protected]_ (mailto:[email protected]) > wrote: Hi all, First time poster here, recently (3 weeks ago) I've been diagnosed with CML at a chronic stage with white bloodcell count 309. Treatment started of with Glivec (Imatinib) and almost 2 weeks ago they switched it to Nilotinib and I was placed in the researchgroup. Last week Thursday my count was 64 and the doctor said it was ok for me to start working a few hours a day and so on. All great news considering it's cancer, we're talking about. Now according to the Nilotinib research documentation I should be receiving PCR results but I have no idea when or what those actually are. Can someone shed some light for me when these results start coming in cause so far I've only been getting white bloodcell count. Regards Drazen -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
