Hi Greenie:
That is excellent news. I'm waiting for my three month results and if
they remain good, I'm having an eyelid lift in September. I'll let you
know as soon as I have results. Can't wait to have peripheral vision!
Marcie
Sent from my iPhone
On Aug 3, 2011, at 10:24 PM, [email protected] wrote:
Thanks Marty
In a message dated 8/3/2011 11:13:50 A.M. Pacific Daylight Time, [email protected]
writes:
That's excellent Greenie!
18's to you
Marty
On Wed, Aug 3, 2011 at 2:05 PM, <[email protected]> wrote:
Hi just received my lab works and everything is O.K.. I'm low on
some of the tests buts it's like that all the time. I'm good to go
for another 3 months.
greenie
In a message dated 8/3/2011 10:00:13 A.M. Pacific Daylight Time, [email protected]
writes:
Hi Draze,
Unfortunatly, I would like to welcome you to "the world of CML"
Fortunatly CML is now much more treatable then in years past. Yes,
as you mention it is cancer, however, if you have to have cancer
then this is probably the one to have because of all the new drugs
and treatments that are available now.
Your WBC being at 309 at your diagnosis wss quite high, but not as
high as mine when it was more then 23+ years ago. Mine was 486,000.
Here is a website describing what PCR is and since you are newly
diagnoised don't be disappointed if yours is not even close to PCRU.
Sometimes it takes many morths even years to get to PCRU but that is
what is really good about all of these drugs they usually help with
your disease and let you live your life. Your WBC going from 309 to
64 is a very good sign of this and your even able to go back to work.
Check out what PCR is, at: http://www.dna.gov/audiences/victim/know/interpreting
By the way, there is also another CML group you can post on. It is
[email protected]
Both this, and that one are very good for information and there are
a lot of very friendly people on both of these lists. If you should
have any more questions or concerns just get on and post them. By
the way where do you live?
Now a little about myself.
I had an Allogeniec Bone Marrow transplant more then 22+ years ago
for CML. I am still here, and so are you. That is the way I look at
it...
I wish you good luck, and whenever I end an email I always end it
with a number, the number is 18's which means life. Stay in touch.
18's to you!
Marty
On Wed, Aug 3, 2011 at 4:31 AM, Draz <[email protected]> wrote:
Hi all,
First time poster here, recently (3 weeks ago) I've been diagnosed
with CML at a chronic stage with white bloodcell count 309. Treatment
started of with Glivec (Imatinib) and almost 2 weeks ago
they switched
it to Nilotinib and I was placed in the researchgroup. Last week
Thursday my count was 64 and the doctor said it was ok for me to start
working a few hours a day and so on. All great news considering it's
cancer, we're talking about.
Now according to the Nilotinib research documentation I should be
receiving PCR results but I have no idea when or what those actually
are. Can someone shed some light for me when these results start
coming in cause so far I've only been getting white bloodcell count.
Regards
Drazen
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