That's excellent Greenie!

18's to you

Marty

On Wed, Aug 3, 2011 at 2:05 PM, <[email protected]> wrote:

> **
> Hi just received my lab works and everything is O.K.. I'm low on some of
> the tests buts it's like that all the time.  I'm good to go for another 3
> months.
>
> greenie
>
>  In a message dated 8/3/2011 10:00:13 A.M. Pacific Daylight Time,
> [email protected] writes:
>
> Hi Draze,
>
> Unfortunatly, I would like to welcome you to "the world of CML" Fortunatly
> CML is now much more treatable then in years past. Yes, as you mention it is
> cancer, however, if you have to have cancer then this is probably the one to
> have because of all the new drugs and treatments that are available now.
>
> Your WBC being at 309 at your diagnosis wss quite high, but not as high as
> mine when it was more then 23+ years ago. Mine was 486,000.
>
> Here is a website describing what PCR is and since you are newly diagnoised
> don't be disappointed if yours is not even close to PCRU. Sometimes it takes
> many morths even years to get to PCRU but that is what is really good about
> all of these drugs they usually help with your disease and let you live your
> life. Your WBC going from 309 to 64 is a very good sign of this and your
> even able to go back to work.
>
> Check out what PCR is, at:
> http://www.dna.gov/audiences/victim/know/interpreting
>
> By the way, there is also another CML group you can post on. It is
> [email protected]
>
> Both this, and that one are very good for information and there are a lot
> of very friendly people on both of these lists. If you should have any more
> questions or concerns just get on and post them. By the way where do you
> live?
>
> Now a little about myself.
>
> I had an Allogeniec Bone Marrow transplant more then 22+ years ago for CML.
> I am still here, and so are you. That is the way I look at it...
>
> I wish you good luck, and whenever I end an email I always end it with a
> number, the number is 18's which means life. Stay in touch.
>
> 18's to you!
>
> Marty
>
> On Wed, Aug 3, 2011 at 4:31 AM, Draz <[email protected]> wrote:
>
>> Hi all,
>>
>> First time poster here, recently (3 weeks ago) I've been diagnosed
>> with CML at a chronic stage with white bloodcell count 309. Treatment
>> started of with Glivec (Imatinib) and almost 2 weeks ago they switched
>> it to Nilotinib and I was placed in the researchgroup. Last week
>> Thursday my count was 64 and the doctor said it was ok for me to start
>> working a few hours a day and so on. All great news considering it's
>> cancer, we're talking about.
>>
>> Now according to the Nilotinib research documentation I should be
>> receiving PCR results but I have no idea when or what those actually
>> are. Can someone shed some light for me when these results start
>> coming in cause so far I've only been getting white bloodcell count.
>>
>> Regards
>> Drazen
>>
>> --
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>> A support group of http://cmlhope.com
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>
>
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