Hi group, Can't compare Sprycel with Gleevec, because I have only taken Sprycel, but I have found that taking it at night helps. Here is a bunch of info on my experiences with leukemia, the drug, doctors, etc. http://www.leukemiasurvivor.co/2011/07/sprycel-dasatinib-at-night-seems-to.html
Hope you all have a great day! On Fri, Sep 30, 2011 at 4:52 AM, lrc lrc <[email protected]> wrote: > U of M Dr Talpaz one of the discovering doctors for all cml drugs. Your > doctor probably confers with Dr Talpaz. > On Sep 30, 2011 7:45 AM, <[email protected]> wrote: > > I was taken off Gleevec in March due to acute kidney failure. Started > > Sprycel one week later. I am doing much better on Sprycel than Gleevec. i > had > > very serious side effects for 10 years, The cramps are gone, I have > stopped > > throwing up, my hemoglobin has climbed from 9 to 11, my white count is up > > > to normal, and my kidneys are slowly recovering. I am on 100mg daily. The > > > only 2 side effects I am having now is bone pain in my legs and a rash. > > Overall, I feel so much better. I am also a Michigan resident. Where do > you > > treat at? I see Dr Shurafa at Great lakes Cancer Management in Grosse > Point. I > > started with him when he was at Henry ford in Detroit. wonderful man. > > Carol kalat > > > > > > In a message dated 9/30/2011 6:35:21 A.M. Eastern Daylight Time, > > [email protected] writes: > > > > Today's Topic Summary > > Group: _http://groups.google.com/group/cmlhope/topics_ > > (http://groups.google.com/group/cmlhope/topics) > > * _Just got the bad news, Gleevec out after 7 years!_ > > (mip://09e06990/default.html#group_thread_0) [1 Update] > > * _Problems with Food and Gleevec_ > > (mip://09e06990/default.html#group_thread_1) [1 Update] > > Topic: _Just got the bad news, Gleevec out after 7 years!_ > > (http://groups.google.com/group/cmlhope/t/d1cf240f129f33ff) > > [email protected] Sep 29 10:18PM -0400 _^_ > > (mip://09e06990/default.html#digest_top) > > > > > > Could anyone give me info about nose bleeds and Gleevec > > Teepee > > > > > > In a message dated 3/29/2011 8:58:13 A.M. Eastern Daylight Time, > > [email protected] writes: > > > > Thannk you for the information. > > > > On Wed, Mar 23, 2011 at 4:38 PM, John Kuptz <[email protected]_ > > (mailto:[email protected]) > wrote: > > > > I was diagnosed in 11-05 and started on Gleevec but within 2 months had > > developed liver function failure. Was started on Sprycel 70mg bid and > that > > just about wiped out my platlets. Waited for bone marrow to recover and > > was > > put on only 20 mg bid. I have been on that ever since. My pcr tests > > comes back UNDECTABLE almost every time they do it every three months. > > Once in > > a great while a very smalll amount is detected. Onocologist said that is > > the name of the game. I do have joint pain and have put on 30 lbs but > > basically that is the only side effect in 4 years. Best of luck to you. > > Carolyn > > ----- Original Message ----- From: "kneesrbad2" <[email protected]_ > > (mailto:[email protected]) > > > To: "CMLHope" <[email protected]_ > > (mailto:[email protected]) > > > > Sent: Tuesday, March 22, 2011 10:59 PM > > > > Subject: [CMLHope] Just got the bad news, Gleevec out after 7 years! > > > > > > > > > > > > > > I don't know what went wrong but my abnormal cells increased 3 fold on > > my last BMA. Now going onto Sprycel! I need everyone who is on > > Sprycel to give me your quick stories of what to expect with the new > > round of side affects from Sprycel. On Gleevec, here is MY list of > > side affects, Diarehea, fatique, eye bleeds, water retention, thin > > skin, pale skin (burn easily), cramps, sinus operation, pumpkin face, > > joint pains, insomnia, etc etc etc. > > > > What am I faced with for side affects on Sprycel? Suppose to start > > it next week. > > > > I am a 55 year old, male, Michigan resident, DX'd on my Wedding > > anniversary in 2004, in full blast stage with a spleen they were going > > to take out immediately and when I say immediately, I mean 3:30 am > > with a full siren ambulance to a major hospital but they saved it!! I > > was tested for a full Bone Marrow Transplant with my brothers and I > > have a 100% match from my younger brother if I need it. I just want > > to hear the good, the bad and the ugly from those on Sprycel, > > please. > > > > Also, and almost as important to our CML family for one reason or > > another I have a few extra bottles of Gleevec 400 mg bottles still > > with the seal on it if anyone is interested in talking with me in > > private. I would like to help someone who may have a huge co pay on > > their Gleevec payments. This will be handled away from this site and > > all parties will get to know who the other parties are. I just don't > > want these expensive drugs to go to waste because my body decides, the > > heck with you, drug change. > > > > Please reply and let me know! Thanks > > > > -- > > [CMLHope] > > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > To post to this group, send email to [email protected]_ > > (mailto:[email protected]) > > To unsubscribe from this group, send email to > > [email protected]_ > > (mailto:[email protected]) > > For more options, visit this group at > > __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) (_ > http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > > > > > > > > > > -- > > [CMLHope] > > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > To post to this group, send email to [email protected]_ > > (mailto:[email protected]) > > To unsubscribe from this group, send email to > > [email protected]_ > > (mailto:[email protected]) > > For more options, visit this group at > > __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) (_ > http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > > > > > > > > > > -- > > [CMLHope] > > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > > __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) (_ > http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > > > > Topic: _Problems with Food and Gleevec_ > > (http://groups.google.com/group/cmlhope/t/14a9abc196016adc) > > [email protected] Sep 29 10:07PM -0400 _^_ > > (mip://09e06990/default.html#digest_top) > > > > > > I Was Wondering if there is any connection with nose bleeds to Gleevec. > > could anyone give me some information about this and is serious? > > > > Thanks > > > > Teepee > > > > > > > > In a message dated 9/27/2011 1:33:36 P.M. Eastern Daylight Time, > > [email protected] writes: > > > > Dr. Moshe Talpaz U of M 734-647-8901. > > On Sep 27, 2011 11:07 AM, <[email protected]_ (mailto:[email protected]) > > > > wrote: > >> Kelly, I don't know how far away you are from Chicago but you could try > >> calling Northwestern Medical Faculty Foundation Comprehensive Cancer > > Center > >> Groups > >>> "CMLHope" group. > >>> To post to this group, send email to [email protected]_ > > (mailto:[email protected]) > >>> To unsubscribe from this group, send email to > >>> [email protected]_ > > (mailto:[email protected]) > >>> For more options, visit this group at > >> __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) > > (_http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > >> A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > >> ------------------------------------------------- > > > >> You received this message because you are subscribed to the Google > > Groups > >> "CMLHope" group. > >> To post to this group, send email to [email protected]_ > > (mailto:[email protected]) > >> To unsubscribe from this group, send email to > >> [email protected]_ > > (mailto:[email protected]) > >> For more options, visit this group at > >> __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) > > (_http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > >> A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > >> ------------------------------------------------- > > > >> You received this message because you are subscribed to the Google > > Groups "CMLHope" group. > >> To post to this group, send email to [email protected]_ > > (mailto:[email protected]) > >> To unsubscribe from this group, send email to > > [email protected]_ > > (mailto:[email protected]) > >> For more options, visit this group at > > __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) (_ > http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > > > > -- > > [CMLHope] > > A support group of __http://cmlhope.com__ (http://cmlhope.com_/) > > (_http://cmlhope.com/_ (http://cmlhope.com/) ) > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > > __http://groups.google.com/group/CMLHope__ > > (http://groups.google.com/group/CMLHope_) (_ > http://groups.google.com/group/CMLHope_ > > (http://groups.google.com/group/CMLHope) ) > > > > > -- > > [CMLHope] > > A support group of _http://cmlhope.com_ (http://cmlhope.com/) > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > > _http://groups.google.com/group/CMLHope_ ( > http://groups.google.com/group/CMLHope) > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [email protected] www.LearntoBallroomDanceOnline.com -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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