Hello Victoria and Marty Guess I am one who is just resting, There are, in the CML community, people that say, "living so close to people who have CML, one becomes burnt out". Not sure if this is the case here. Some others are fighting health problems on many fronts, I do read all the posts but as you say "they are few and far between". In my case I have had CML for over 35 years, whenever I see a new case on here, I feel for them but let them know it is treatable. Be safe all SkipD
________________________________ From: Martin Gartenberg <[email protected]> To: [email protected] Sent: Saturday, February 25, 2012 4:26:33 PM Subject: Re: [CMLHope] Digest for [email protected] - 2 Messages in 2 Topics Hi Victoria, Sometimes some among us just decides to take a break. Sometimes others become depressed at what they are reading about others. There could be a host of reasons that people are not posting as they once did. If your talking about the "pioneers" then that is probably what I am. I had CML more then 22 years ago. This May it will be my 23rd year. I had a bone marrow transplant 22 years ago when the procedure was relatively new and there wasn't a lot of information about it. At that time there were no TKI's available so I had no other choice of getting onto a blind trial of Alpha Interferon or the transplant. If I were to go into that trial basis I could not be guaranteed if I would be receiving it or just a placebo. Since my white blood count was over 486,000 at the time and I was about to go into blast chrises I opted for the transplant because I had a suitable donor, my sister. So, there you have it, and just try to remember that sometimes people just like to keep to themselves unless that are comfortable about discussing their own problems with others, many of which are strangers to them. I always end any of my posts with the numbers 18. Those numbers 18 symbolizes life. 18's to you, Marty On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter <[email protected]> wrote: It IS strange that no one, or very few, CMLers are posting. Have we become fatigued with focusing on our chronic condition and its side-effects? How many of us have decided just to get on with our lives and to live as fully as we can, trusting that Gleevec or the other inhibitors will keep us going? I think we may have forgotten how dismayed (euphemism) each of us was when we were first diagnosed and how glad we were to find this website and the information and support we received from it. Perhaps there are other, newer CML websites meant to provide information without demanding any personal, emotional involvement on the part of the reader. No doubt pioneers eventually get tired. Maybe that's what's at work here. > > >On Sat, Feb 25, 2012 at 5:50 AM, <[email protected]> wrote: > > Today's Topic Summary >>Group: http://groups.google.com/group/cmlhope/topics >> * FINALLY RELIEF FROM CRAMPS [1 Update] >> * No posts [1 Update] >> FINALLY RELIEF FROM CRAMPS >> No posts >>You received this message because you are subscribed to the Google Group >>cmlhope. >>You can post via email. >>To unsubscribe from this group, send an empty message. >>For more options, visit this group. >>-- >>[CMLHope] >>A support group of http://cmlhope.com >>------------------------------------------------- >> >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To post to this group, send email to [email protected] >>To unsubscribe from this group, send email to >>[email protected] >>For more options, visit this group at http://groups.google.com/group/CMLHope > -- >[CMLHope] >A support group of http://cmlhope.com >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
