Hi Victoria, Sometimes some among us just decides to take a break. Sometimes others become depressed at what they are reading about others. There could be a host of reasons that people are not posting as they once did.
If your talking about the "pioneers" then that is probably what I am. I had CML more then 22 years ago. This May it will be my 23rd year. I had a bone marrow transplant 22 years ago when the procedure was relatively new and there wasn't a lot of information about it. At that time there were no TKI's available so I had no other choice of getting onto a blind trial of Alpha Interferon or the transplant. If I were to go into that trial basis I could not be guaranteed if I would be receiving it or just a placebo. Since my white blood count was over 486,000 at the time and I was about to go into blast chrises I opted for the transplant because I had a suitable donor, my sister. So, there you have it, and just try to remember that sometimes people just like to keep to themselves unless that are comfortable about discussing their own problems with others, many of which are strangers to them. I always end any of my posts with the numbers 18. Those numbers 18 symbolizes life. 18's to you, Marty On Sat, Feb 25, 2012 at 9:58 AM, Victoria Reiter <[email protected]> wrote: > It IS strange that no one, or very few, CMLers are posting. Have we > become fatigued with focusing on our chronic condition and its > side-effects? How many of us have decided just to get on with our lives > and to live as fully as we can, trusting that Gleevec or the other > inhibitors will keep us going? I think we may have forgotten how dismayed > (euphemism) each of us was when we were first diagnosed and how glad we > were to find this website and the information and support we received from > it. Perhaps there are other, newer CML websites meant to provide > information without demanding any personal, emotional involvement on the > part of the reader. No doubt pioneers eventually get tired. Maybe that's > what's at work here. > > On Sat, Feb 25, 2012 at 5:50 AM, <[email protected]> wrote: > >> Today's Topic Summary >> >> Group: http://groups.google.com/group/cmlhope/topics >> >> - FINALLY RELIEF FROM >> CRAMPS<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_0>[1 >> Update] >> - No >> posts<https://mail.google.com/mail/html/compose/static_files/blank_quirks.html#135b42244878824f_group_thread_1>[1 >> Update] >> >> FINALLY RELIEF FROM >> CRAMPS<http://groups.google.com/group/cmlhope/t/538b0e9d8515a9e8> >> >> [email protected] Feb 24 05:05PM -0500 >> >> My husband found an ointment that really eliminates the excruciating >> leg >> cramps (a side effect of Gleevec). It is called Pain Gon. It reacts >> fast >> when applied to the affected area. For more information call Heather >> Duncan >> (Quad City Physical Therapy) at 563-359-3799. >> >> >> >> No posts <http://groups.google.com/group/cmlhope/t/dbc4f55a359a3eaa> >> >> [email protected] Feb 24 08:33AM -0500 >> >> I'm receiving posts. Seems that no one is sending out emails. greenie >> >> >> In a message dated 2/24/2012 12:46:29 A.M. Eastern Standard Time, >> [email protected] writes: >> >> Where did everybody go??? Have not received a post for many days now. >> Checked my email settings and quarantine box. Everything looks good. >> Can't >> believe no one is posting. Anybody else having problems, other than >> Richard and I? >> Joyce in IL >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google >> Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> >> >> >> You received this message because you are subscribed to the Google >> Group cmlhope. >> You can post via email <[email protected]>. >> To unsubscribe from this group, send<[email protected]>an >> empty message. >> For more options, visit <http://groups.google.com/group/cmlhope/topics>this >> group. >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
