Hi Marty, I started Gleevec on Feb. 5th 2000. I was in remission by May of that same year. Two years ago I had a problem and was put on two different meds. I ended up very sick from the meds, so I took it on my own to stop the Gleevec for 26 days. After having my blood work in Chicago I received a call from my Doctor that my CML showed back in my blood work. I guess I'm one of the few that will have to get taking my Gleevec to the end or until they do come up with a cure. Their have been a few people I've been told that after stopped taking their Gleevec that their CML didn't come back. I guess those few are the lucky one's. But what the hack I'm still here and kicking and if they would have now ask me to be in their study things I'm sure would be different. So I'm a very LUCKY person. Better then winning the Lotto. greenie In a message dated 10/16/2011 11:31:57 A.M. Eastern Daylight Time, [email protected] writes:
Hi Judy, Ten years in rimission, well since it has been ten years your not in remission your CURED! Judy you are also 18's because those numbers in the Hebrew language means life, and is pronunced as CHI. 18's Marty On Sun, Oct 16, 2011 at 2:32 AM, judy <[email protected]_ (mailto:[email protected]) > wrote: Hello people long time no write. I've always wanted a tattoo so on mothers day my grands got together and took me for a tatoo. I wanted to be able to see it and now it ment something. I got the pink ribbon on my left wrist so I can see it all the time. Have many people comment on it. its about an inch and a half I love it.. Just what does the 18s mean. JUDY been in remission for about 10 yrs YEAHH JUDY From: kellyelise <[email protected]_ (mailto:[email protected]) > To: CMLHope <[email protected]_ (mailto:[email protected]) > Sent: Sunday, October 16, 2011 1:21 AM Subject: [CMLHope] Re: OnControl I Marty, Thank you from the bottom of my heart for your wonderful words and support. You are very special and your positive and wise words are always uplifting. I've continuously followed your posts even if I did not always comment on them. I remember your trademark "18s" from several years ago and kind of filed it away....when I returned to this site, I was once again reminded of 18s. I'm really not a "body art" type of person, but, I had decided a long time ago that I wanted a tattoo on my foot, BUT, it had to be something of great significance and meaning....Once I am sure I am in "good" health and can find a reputable artist, I would certainly like to have 18s on the top of my foot. I value all religions and my choice of placement (the foot) is the only acceptable place I would consider something permanent. I KNOW it is there. Out of respect and because of my own ignorance, what is the proper Hebrew "signature?" I hope you do not find this offensive, if so, please let me know. I can take it (really!). My fireplace mantle displays a Menorah, Buddha, a Hindu deity as well as an antique Tibetan singing bowl. I am waiting to find a special cross to place there as well. I wear many Saints medals around my neck and have a special affinity for St. Michael and I'm not even Catholic. Okay, so I'm weird, lol.... Thank you, Marty, I respect your positive outlook and sage advice. 18s, Kelly Oct 14, 4:38 pm, Martin Gartenberg <[email protected]_ (mailto:[email protected]) > wrote: > Hi Kelly, > > Actually there is a "Magic Wand" and that is you. > > If you remember what I told you, Leukemia is a disease of the body but it is > also a disease of the mind. You know that your mind has a lot to do with > your control over your body, and that is exactly what your doing for > yourself. > > Just look at some of the things your writing about. You have a great doctor, > the BMB/BMA didn't really bother you all that much, but the key words that > you wrote were "fun, fun" on your trip down south. > > I must tell you that you have a terrific attitude, and that in it itself is > helping you so much. > > I'm also happy to see that your using my trademark, and I just love to see > people do that. What is my trademark? > > it is... 18's of course. > > And 18's to you Kelly... > > Marty > > > > On Thu, Oct 13, 2011 at 1:00 AM, kellyelise <[email protected]_ (mailto:[email protected]) > wrote: > > Thank you everyone!!!! > > > I saw Dr. Cortes and they did a BMA and a BMB (no drill...but an > > excellent physician performed them and it was not bad at all!!!). Dr. > > Cortes informed me that he has never treated a patient with both CML > > and PAH... wow....I was sure he did!! So, pending results - if I am > > still in remission - no TKIs - YAY!! If tests come up positive - > > Tasigna at 200 mg x2 daily. So, now my mother, brother and I are > > meandering the southern coast (New Orleans, Biloxi, Florida panhandle) > > before we wend our way back to Ohio (Fun, fun!!). I was a little > > disappointed, but, then I had to be reminded (thank you Peg!) that > > there is NO magic wand...so, it is what it is. I'll be fine. Really. > > > 18s to EVERYONE! > > Kelly > > > On Oct 9, 11:03 pm, [email protected]_ (mailto:[email protected]) wrote: > > > good luck Kelly...we are thinking of you and ending you all good thing. > > You > > > are going to a fine doc, feel confident they will be able to support you > > > well. Take care, Beth > > > -- > > [CMLHope] > > A support group ofhttp://_cmlhope.com_ (http://cmlhope.com/) > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected]_ (mailto:[email protected]) > > To unsubscribe from this group, send email to > > [email protected]_ (mailto:[email protected]) > > For more options, visit this group at > >_http://groups.google.com/group/CMLHope-_ (http://groups.google.com/group/CMLHope-) Hide quoted text - > > - Show quoted text - -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
