HEY, HEY Suzieq, glad to here the good news. I started 400 mg at the start of my study but received the Gleevec rash and they didn't know at that time what caused it. So they dropped me to 300 mg and that's where I've been all these years. I started STI571 on Jan. 9th 2000 and as far as I know it's still working. I have blood work the first week in Aug. Time will tell. Great news, greenie In a message dated 6/28/2012 3:06:37 P.M. Eastern Daylight Time, [email protected] writes:
Hello fellow CML Survivors: Well, it took 3 weeks, but finally got my results back yesterday. It's been about 2 months now since I was able to cut my dosage of 400mgs. Gleevec to 200mgs. So, my doctor and I was anxious to see if any changes. I am very happy to report a clean "None Detected" all across the board! Whoo-Hoo and Hallelujah!!! I cried tears of happiness. This makes 5 in a row since mid-2010. When I go back in November for next check-up, I am thinking that one might be even more important as more time will have passed, so will be anxious to see if it stays at "0". On another note, the 8 1/2 years of Gleevec is taking it's tole on my body. I now have Osteoarthritis in my lower spine and both SI joints (and I'm sure elsewhere) bad. My bones & joints are awful as are the Muscle spasms. I'm seeing my Chiropractor regular just so he can keep me up and going. I have one Disc (L-5 & S-1) that is almost bone on bone. He said that later down the road, if I don't won't surgery (& I would rather not), then pain management may be my only option. But, not there yet. Other good news, I'm close to a 40 pound loss!! Whoo-hoo! God bless you all, Suzieq -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
