I have been on 400 of gleevec sence april  2003 and have thought about
going to 200 . been bcr neg since nov  2003 .  don't seem to have lots
of issues with 400mg just wondering how your feeling on the 200 now .
just worried with 200 it might come back , don't want to loose ground
after 9 yrs .  I am 46 and still have a lot of life I want to enjoy .  

Larry  

Lexington , ky  .      

 

From: [email protected] [mailto:[email protected]] On
Behalf Of Suzieq
Sent: Wednesday, December 12, 2012 1:22 PM
To: [email protected]
Subject: [CMLHope] BCR-ABL Results

 

Good Day to all my fellow CML Survivors:

I finally received my test results from my last visit (November 21st)
with my Onc./Hem. in St. Louis.  I guess because of the holidays, it
took a while getting to me. (smile)
I am still "None Detected"  all across the board!  HALLELUJAH!!!!  I
have tested this now each time since July 12, 2010.  And, this time I
thought it would be most important since
it was 1 year since cutting my Gleevec from the 400mgs I had been taking
since day one (Feb. '04) in half to 200mgs.  So, it is working just
fine!  My body seems to have adjusted to the 200mgs. and I don't have
any problems with taking it as I did with the 400.  

I am still having a lot of joint pain,  but not a whole lot I can do
about it.  I did talk with her about how I think we are going to have to
address this within the next year.  I told her that maybe they could
send me to some doctor that specializes in Arthritis. 

Well,  just wanted to share this.  I want to also wish every one a very
Merry Christmas & Happy Holidays.  God bless you one and all throughout
the New Year, too!

Love & Keep Looking Up,
Suzieq

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