Hi Beth, I just have one thing to say in answer to your post. You wrote "Isolation and fear are powerful tools" Indeed they are, but do you want to know a much more powerful tool? It's your Mind.
18's, Marty On Fri, Apr 19, 2013 at 1:28 PM, <[email protected]> wrote: > Dear Skip, Marty, Millie, and all those warriors who are struggling right > now. I want to pass along a great big hug filled with hope, and light, and > healing and positive energy. We need each other during the rough times and > I am so glad we have one another. I too have been struggling mightily, but > find the one thing that helps, that I keep on working on, is trusting in, > believing in, knowing that we can live and love well inspite of and perhaps > in some cases because of our illness and how it informs our lives. > Isolation and fear are powerful tools that push against us. Community and > holding hope and faith for ourselves, our bodies and our spirits, here, > united together, will serve and guide us well. I read every day and think > of all my fellow warriors out there, those who write, and those who read, > and send a prayer to all for peace of mind body and spirit. > I tried bosutinib and had horrible side effects at a moderate dose, > muscle rigidity all over the body, elevated cpk, emotional distress... > after 8 weeks, the BCR showed it had not done anything for the cancer, the > cancer had actually grown threw it and I lost two logs. So now back on > sprycel at 50 and working on getting back into remission. As I had to go > off sprycel in December because of toxicity, it's a scary time. But I > remain positive and am researching alternative and complementary options to > aid with the toxiicity. If anyone has any suggestions about muscle > spasticity, please let me know. I can handle the rashes, migraines, muscle > wasting/fatigue/ weakness, But this one is new, ongoing and the greatest > challenge yet. > > thanks for yoru help. > > Beth > > -----Original Message----- > From: gene and guy Larcher <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Apr 19, 2013 10:49 am > Subject: [CMLHope] Skip Duffie > > Dear Skip: > > So good to hear from you after quite some time. > > Very sorry to hear you have been so poorly but the good news is that you > are getting better. > > You, along with Marty, have given tremendous hope to the rest of us and > shown how to bear long illness with good spirits. > > Dear old warrior - we wish you the very best and hope to hear much more > from you in the future. > > Guy > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
