Great advice Marty, white count down to 1.9 and ANC still down to less the 300 once we bring them up I will back in the saddle again Thanks Marty
>________________________________ > From: Marty Gartenberg <[email protected]> >To: [email protected] >Sent: Saturday, April 20, 2013 12:48:21 AM >Subject: Re: [CMLHope] Skip Duffie > > > >Hi Beth, > >I just have one thing to say in answer to your post. You wrote "Isolation and >fear are powerful tools" Indeed they are, but do you want to know a much more >powerful tool? It's your Mind. > >18's, > >Marty > > > > >On Fri, Apr 19, 2013 at 1:28 PM, <[email protected]> wrote: > >Dear Skip, Marty, Millie, and all those warriors who are struggling right now. >I want to pass along a great big hug filled with hope, and light, and healing >and positive energy. We need each other during the rough times and I am so >glad we have one another. I too have been struggling mightily, but find the >one thing that helps, that I keep on working on, is trusting in, believing >in, knowing that we can live and love well inspite of and perhaps in some >cases because of our illness and how it informs our lives. Isolation and fear >are powerful tools that push against us. Community and holding hope and faith >for ourselves, our bodies and our spirits, here, united together, will serve >and guide us well. I read every day and think of all my fellow warriors out >there, those who write, and those who read, and send a prayer to all for peace >of mind body and spirit. >> >>I tried bosutinib and had horrible side effects at a moderate dose, muscle >>rigidity all over the body, elevated cpk, emotional distress... after 8 >>weeks, the BCR showed it had not done anything for the cancer, the cancer had >>actually grown threw it and I lost two logs. So now back on sprycel at 50 and >>working on getting back into remission. As I had to go off sprycel in >>December because of toxicity, it's a scary time. But I remain positive and am >>researching alternative and complementary options to aid with the toxiicity. >>If anyone has any suggestions about muscle spasticity, please let me know. I >>can handle the rashes, migraines, muscle wasting/fatigue/ weakness, But this >>one is new, ongoing and the greatest challenge yet. >> >>thanks for yoru help. >> >>Beth >> >> >>-----Original Message----- >>From: gene and guy Larcher <[email protected]> >>To: cmlhope <[email protected]> >>Sent: Fri, Apr 19, 2013 10:49 am >>Subject: [CMLHope] Skip Duffie >> >> >>Dear Skip: >> >>So good to hear from you after quite some time. >> >>Very sorry to hear you have been so poorly but the good news is that you are >>getting better. >> >>You, along with Marty, have given tremendous hope to the rest of us and shown >> how to bear long illness with good spirits. >> >>Dear old warrior - we wish you the very best and hope to hear much more from >>you in the future. >> >>Guy >> -- >>-- >>[CMLHope] >>A support group of http://cmlhope.com/ >>------------------------------------------------- >> >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To post to this group, send email to [email protected] >>To unsubscribe from this group, send email to >>[email protected] >>For more options, visit this group at http://groups.google.com/group/CMLHope >>--- >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To unsubscribe from this group and stop receiving emails from it, send an >>email to [email protected]. >>For more options, visit https://groups.google.com/groups/opt_out. >> >> >> -- >>-- >>[CMLHope] >>A support group of http://cmlhope.com/ >>------------------------------------------------- >> >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To post to this group, send email to [email protected] >>To unsubscribe from this group, send email to >>[email protected] >>For more options, visit this group at http://groups.google.com/group/CMLHope >>--- >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To unsubscribe from this group and stop receiving emails from it, send an >>email to mailto:cmlhope%[email protected]. >>For more options, visit https://groups.google.com/groups/opt_out. >> >> >> > -- >-- >[CMLHope] >A support group of http://cmlhope.com/ >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to [email protected]. >For more options, visit https://groups.google.com/groups/opt_out. > > > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
