Congrats on the 6 yrs and 3 months. I get my results tommorrow to see if I will be back on meds,
On Sunday, June 23, 2013 2:14:27 PM UTC-5, [email protected] wrote: > > So Happy for you, SuzieQ! Not happy about the sciatica, etc., so hope you > can conquer that soon. > > I am beginning tasigna on Wednesday at the lowest dose. I've been off all > meds for 6 yrs and 3 mos., and can hardly move with like sludge in my > veins. Absolutely no energy. The numbers were 17.7 for the recent fish > test, so decided it was time. Please pray I tolerate this drug and have no > more brain bleeds from the medication as I did with gleevec. > > My doc tells me 125 mg. once a day is the lowest dose. Can anyone > verify this for me? I'm very concerned, as he had never heard of bosutinib > two months ago, but now did not recommend it for me. > > Susan > "Look among the nations and watch; be utterly astounded! For I will work > a work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: Suzieq <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Sun, Jun 23, 2013 12:35 pm > Subject: [CMLHope] BCR-ABL Results > > Hello everyone: > > I don't know if I posted my results or not, but they came back "none > detected" once again........it's been this way straight through since the > beginning of 2010......YIPPEE!!! My doctor is letting me cut the Gleevec > back to 100mgs a day and we will see how that does. I will celebrate my > tenth anniversary of my diagnosis next February 6th (according to my mom as > that's her birthday and she always reminds me that I called her and told > her on her birthday about the diagnosis.) > > I see the new Pain Management Specialist this coming Friday. I do hope > he is able to help me. I have had two awful bad nights in a row now. Was > doing much better up till then. Been seeing my Chiropractor regular and > he's been helping me quite a bit with my Sciatic leg pain and hip pain. > But, then the arthritis in the SI joints decided to act up and there isn't > a whole lot he can do for that. I've been hitting my bottle of pain meds > pretty regular for past two days. I am beginning to think my husband may > be right about me being in a wheel chair soon. But, I will do all I can to > fight that and keep going. I don't mind walking with my cane if I need to, > but don't want to give into the wheel chair before I turn 60 years old. > > Alright, gotta get going now. Y'all have a great day and enjoy the > summer..... > > Suzieq > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
