Congrats on your first undetectable, may you see many more. Rihard H.
On Monday, June 24, 2013 7:54:23 PM UTC-5, Beth wrote: > > Congrats > suzieq on non detected! so sorry you are in such pain with the joints....I > do think that for many people, not just fatigue, but muscle weakness, and > significant pain, be it arthritis, sciatica, etc....that some how these > meds for some of us, inhibit not only the protein that is necessary for > CML to be active, but also, inhibits other cellular activites, thatimpact > healing, natural regeneration of not only wound or tissue healing, but > other things as well, not really understood yet, but the symptoms...for > people that had no symptoms prior to taking thehTKI's now have them....it's > just a thought, I share your pain.It's a balancing act... Hope you stay > out of the wheel chair and live your life well indefinately!!! Thinking of > you and all our fellow cml warriors..What a strong and tender, inspiring > bunch of people... > > Warmest wishes to all. Beth > p.s. I got my first official undetectabale in 3.5 years as of last week. > On 60 of sprycel. That dose is too toxic for me, so we have to lower it, > but I now know how much med I need to take to get into CMR. Balancing..... > > > > > > > -----Original Message----- > From: Richard H <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Mon, Jun 24, 2013 12:33 am > Subject: [CMLHope] Re: BCR-ABL Results > > Congrats on the 3 1/2 yrs of none detected. > > On Sunday, June 23, 2013 11:35:09 AM UTC-5, Suzieq wrote: >> >> Hello everyone: >> >> I don't know if I posted my results or not, but they came back "none >> detected" once again........it's been this way straight through since the >> beginning of 2010......YIPPEE!!! My doctor is letting me cut the Gleevec >> back to 100mgs a day and we will see how that does. I will celebrate my >> tenth anniversary of my diagnosis next February 6th (according to my mom as >> that's her birthday and she always reminds me that I called her and told >> her on her birthday about the diagnosis.) >> >> I see the new Pain Management Specialist this coming Friday. I do hope >> he is able to help me. I have had two awful bad nights in a row now. Was >> doing much better up till then. Been seeing my Chiropractor regular and >> he's been helping me quite a bit with my Sciatic leg pain and hip pain. >> But, then the arthritis in the SI joints decided to act up and there isn't >> a whole lot he can do for that. I've been hitting my bottle of pain meds >> pretty regular for past two days. I am beginning to think my husband may >> be right about me being in a wheel chair soon. But, I will do all I can to >> fight that and keep going. I don't mind walking with my cane if I need to, >> but don't want to give into the wheel chair before I turn 60 years old. >> >> Alright, gotta get going now. Y'all have a great day and enjoy the >> summer..... >> >> Suzieq >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
