Marty....You give such excellent advice. I sure hope that Terri doesn't get to discouraged and will continue to fight. They (Social Security) just hopes that you will give up. I had to fight with them one time, and thank God I did find someone at the office locally that helped me through it all. This was in regards to money that was being paid to my Grandson (adopted son) Chris and they were going to take it away from him, but somehow, we stopped it all. They said I hadn't filled out paper work that was sent to me, and I told them, that I couldn't fill out what I hadn't received. Like I said, I did get in touch with this person over the phone, and he asked me to come into the office which really worked for us. Terri, listen to Marty as he knows what he's talking about. It is terrible what they try to do to people. They act like it's their money. I'm glad that you don't have Multiple Myeloma...that's such good news.
Hugs and 18's to both of you, Millie ----- Original Message ----- From: Marty Gartenberg To: [email protected] Sent: Thursday, August 08, 2013 11:01 PM Subject: Re: [CMLHope] For Terri Hi Again Terri, Remember what I said, you are your own best advocate, and sometimes you have to do things that can help you along. If you asked for a continuation then it should be on the records. Did you get any paperwork or do you remember who you spoke with about that continuance?? Take a suggestion and don't do any of this on the phone. First call and set up an appointment, but only with a supervisor. Once you have that appointment you show up wearing a surgical mask and gloves and try to sit away from the others that are there. Since you have CML you are immuno compromised and once they see you there you will have their attention. This is exactly what I did once I got out of that plastic bubble. If you can't get any satisfaction at your local social security office then simply travel to another office and try there. You will win but only if you take things into your own hands. Do not get discouraged, I didn't! 18's Marty On Thu, Aug 8, 2013 at 4:44 PM, <[email protected]> wrote: Thanks Peg! I have a lawyer and that is the thing, this is to be a continuation so not to start a new claim. I've been on phone all day and actually on hold right now. They are telling me my Medicare is no longer in effect. Even though I appealed cessation within ten days..... which was to allow me two more months of coverage. So crazy! I have to plan to have some kind of coverage while this appeal is going on. Our local office is about worthless. They have no information and no answers. Terri In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time, [email protected] writes: Terri, Your Nephrologist is an ass...and is not the final word on whether you are disabled or not, there are plenty of folks on disability because they are on dialysis. However, remember that you don't want to file a NEW claim but rather, reopen the old one. If you were to file it on the basis of dialysis it would start an entirely new claim with a new wait period for your Medicare. You want to show that your health has deteriorated as a result of the ORIGINAL claim, so all of that time applies to the wait and you could have Medicare immediately. ANY doctor that cares about you and recognizes that you are unable to work can file your disability. If you don't have one on your team that will do that for you, perhaps a disability lawyer can recommend one. Sorry about the tough road ahead...I relate...I have just been diagnosed with my third primary cancer since being diagnosed with CML three years ago, have had MS for 24 years and care for my husband who has brain damage. The best advice I can give you besides find a caring doc and a new lawyer is to take each day, one bite at a time. Message me any time I can be of help. I care. peg -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. 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