Hi Millie, One of the reasons that I gave Terri this advice is because it is exactly what I had to do in order to get my Medicare benefits even though they were already approved or so I thought. I did go the the Social Security office in person in Staten Island which is where I used to live, wearing a surgical mask and gloves. They were very accommodating to me.
18's Marty On Thu, Aug 8, 2013 at 11:10 PM, C.M. Houtz <[email protected]> wrote: > ** > *Marty....You give such excellent advice. I sure hope that Terri doesn't > get to discouraged and will continue to fight. They (Social Security) just > hopes that you will give up. I had to fight with them one time, and thank > God I did find someone at the office locally that helped me through it > all. This was in regards to money that was being paid to my Grandson > (adopted son) Chris and they were going to take it away from him, but > somehow, we stopped it all. They said I hadn't filled out paper work that > was sent to me, and I told them, that I couldn't fill out what I hadn't > received. Like I said, I did get in touch with this person over the phone, > and he asked me to come into the office which really worked for us. Terri, > listen to Marty as he knows what he's talking about. It is terrible what > they try to do to people. They act like it's their money. I'm glad that > you don't have Multiple Myeloma...that's such good news. * > ** > *Hugs and 18's to both of you,* > *Millie* > > ----- Original Message ----- > *From:* Marty Gartenberg <[email protected]> > *To:* [email protected] > *Sent:* Thursday, August 08, 2013 11:01 PM > *Subject:* Re: [CMLHope] For Terri > > Hi Again Terri, > > Remember what I said, you are your own best advocate, and sometimes you > have to do things that can help you along. If you asked for a continuation > then it should be on the records. Did you get any paperwork or do you > remember who you spoke with about that continuance?? > > Take a suggestion and don't do any of this on the phone. First call and > set up an appointment, but only with a supervisor. Once you have that > appointment you show up wearing a surgical mask and gloves and try to sit > away from the others that are there. > > Since you have CML you are immuno compromised and once they see you there > you will have their attention. This is exactly what I did once I got out of > that plastic bubble. > > If you can't get any satisfaction at your local social security office > then simply travel to another office and try there. You will win but only > if you take things into your own hands. Do not get discouraged, I didn't! > > 18's > > Marty > > > On Thu, Aug 8, 2013 at 4:44 PM, <[email protected]> wrote: > >> ** >> Thanks Peg! I have a lawyer and that is the thing, this is to be a >> continuation so not to start a new claim. I've been on phone all day and >> actually on hold right now. They are telling me my Medicare is no longer in >> effect. Even though I appealed cessation within ten days..... which was to >> allow me two more months of coverage. So crazy! I have to plan to have some >> kind of coverage while this appeal is going on. Our local office is about >> worthless. They have no information and no answers. >> >> Terri >> >> >> >> >> In a message dated 8/6/2013 3:16:57 P.M. Eastern Daylight Time, >> [email protected] writes: >> >> Terri, >> >> Your Nephrologist is an ass...and is not the final word on whether you >> are disabled or not, there are plenty of folks on disability because they >> are on dialysis. However, remember that you don't want to file a NEW claim >> but rather, reopen the old one. If you were to file it on the basis of >> dialysis it would start an entirely new claim with a new wait period for >> your Medicare. You want to show that your health has deteriorated as a >> result of the ORIGINAL claim, so all of that time applies to the wait and >> you could have Medicare immediately. ANY doctor that cares about you and >> recognizes that you are unable to work can file your disability. If you >> don't have one on your team that will do that for you, perhaps a disability >> lawyer can recommend one. >> >> Sorry about the tough road ahead...I relate...I have just been diagnosed >> with my third primary cancer since being diagnosed with CML three years >> ago, have had MS for 24 years and care for my husband who has brain >> damage. The best advice I can give you besides find a caring doc and a new >> lawyer is to take each day, one bite at a time. Message me any time I can >> be of help. 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