Hi Beth, Thanks so much for your kind response! Interesting that you also take Apple cider Vinegar. I am currently wondering if the Sprycel actually caused me to have low stomach acid, as the first year I was on it I had a great response with continual decreases in my PCR.
It was the second year that the PCR began to increase, up until I started the Vinegar theory! I wonder if by you taking the vinegar all along, your stomach acid wasn't affected. What is your dose of Sprycel and how long have you taken it? When were you dx'd? Thanks, Michele On Mon, Sep 16, 2013 at 5:29 PM, <[email protected]> wrote: > I just wanted to say that I so appreciate your posts Michele, and your > beautiful family, and dancing...I think your vinegar theory is interesting. > I have been taking apple cider vinegar, Braggs, as well as pill form to > help alkalize my body.....maybe it is helping my CML...I have never taken > it with sprycel for the acidity in the tummy issue, that is very > interesting to me. There are also a few people who are trying to take > sprycel with tumeric and have had a significant reduction in the cml > numbers....tumeric follows the same pathways as sprycel does and may be not > only an anti inflammatory, but enhances the effectiveness of the > sprycel...I have not taken it myself yet...because my docs are concerned > that it woudl enhance myside effect profile, as well as enhance the > effectiveness of the drug....so howmuch sprycel to take....for each of our > bodies is a good question...the least amount you can take to avoid > toxicity, but the greatest amount to ensure a positive outcome and so that > we don't become resistant to the drug....who knows? I think it's such an > individual thing..truly....take good care, and keep us posted... warm > regards, Beth > > > -----Original Message----- > From: LearnToBallroomDanceOnline.com <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Sep 16, 2013 5:40 pm > Subject: Re: [CMLHope] Taking a Poll! > > I am actually taking Sprycel...I have ever taken Tasigna. > > > On Mon, Sep 16, 2013 at 3:32 PM, Susan Zimmerman <[email protected]>wrote: > >> They are interesting and I did read them. But I don't know enuf about >> tasigna to say what you should be doing! >> >> >> >> Susan F. Zimmerman >> "Look among the nations and watch; be utterly astounded! For I will work >> a work in your days which you would not believe, though it were told you." >> Hab. 1:5 >> >> >> -----Original Message----- >> From: LearnToBallroomDanceOnline.com <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Mon, Sep 16, 2013 4:06 pm >> Subject: Re: [CMLHope] Taking a Poll! >> >> Sorry Susan, I guess you would have had to read previous posts, about >> the PE, vinegar, increasing and decreasing PCR! >> >> http://www.leukemiasurvivor.co/2013/08/absorption-of-medication-could-this-be.html >> http://www.leukemiasurvivor.co/2013/08/sucking-down-mothers.html >> >> http://www.leukemiasurvivor.co/2013/08/a-negative-pcr-really.html >> >> I have some interesting theories going on! >> >> Thanks, >> >> Michele >> >> >> On Mon, Sep 16, 2013 at 1:40 PM, Susan Zimmerman <[email protected]>wrote: >> >>> I do not have enuf info to make a call on that at all.... >>> >>> >>> Susan F. Zimmerman >>> "Look among the nations and watch; be utterly astounded! For I will >>> work a work in your days which you would not believe, though it were told >>> you." Hab. 1:5 >>> >>> >>> -----Original Message----- >>> From: LearnToBallroomDanceOnline.com <[email protected]> >>> To: cmlhope <[email protected]> >>> Sent: Mon, Sep 16, 2013 3:36 pm >>> Subject: [CMLHope] Taking a Poll! >>> >>> Hi All, >>> So, I began taking Sprycel again after pleural effusion. Taking a poll >>> of what YOU think my dosage should be! Here are the facts: http:// >>> www.leukemiasurvivor.co/2013/09/back-on-sprycel-side-effects-return.html >>> >>> Thanks, hope you all are having a great day, >>> Michele >>> >>> -- >>> [email protected] >>> www.LearntoBallroomDanceOnline.com<http://www.learntoballroomdanceonline.com/> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/groups/opt_out. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/groups/opt_out. >>> >> >> >> >> -- >> [email protected] >> www.LearntoBallroomDanceOnline.com<http://www.learntoballroomdanceonline.com/> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/groups/opt_out. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/groups/opt_out. >> > > > > -- > [email protected] > www.LearntoBallroomDanceOnline.com<http://www.learntoballroomdanceonline.com/> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- [email protected] www.LearntoBallroomDanceOnline.com -- -- [CMLHope] A support group of http://cmlhope.com 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