Hi Michelle, Thanks for your clarification on your dosing, it makes perfect sense now. I am really intrigued by your stomach acid theory. I had been maintaining PCRU for almost two years on a really low dose of Sprycel, but recently came up trace on the last two, prompting a slight increase in dosing. At the same time, I was developing more dietary distress after eating, almost like a gallbladder attack, only I have no gall bladder! I discovered that I could avoid that if I drank lemon juice before meals, which I did with my last dose of Sprycel with catastrophic side effects...the whole body pain, muscle spasm thing that actually reduced me to tears for about 17 hours. I thought it was the increase in dose, even though it had been two weeks since the increase. Now I am wondering if I simply absorbed more because of the lemon juice and if I could go back to the lower dose with lemon and get back to PCRU. Going to kick that thought around with my research doc today. Thought I was going to Tasigna...but the devil you know is always less scary than the one you don't...this might be worth testing.
Since you asked, I have a 24 year history of MS, was diagnose with CML in Feb 2010, Melanoma Mar 2010. Started on Gleevec, switched to Sprycel after eight months due to life damaging side effects on Gleevec. Ended up on a twice a week dose because side effects are so severe that I must block two days out of my week to be bedridden. Just accidentally learned that I also have a tumor in my abdomen that in retrospect appears to have been there since CML diagnosis, but was omitted from scan reports. Still trying to determine diagnostically how bad it is and if it is treatable and (like that wasn't enough) while doing diagnostics on that they found something in my lungs...time to stop looking, huh? ;) On Monday, September 16, 2013 12:36:57 PM UTC-7, Michele, Loves to Dance! wrote: > > Hi All, > So, I began taking Sprycel again after pleural effusion. Taking a poll of > what YOU think my dosage should be! Here are the facts: http:// > www.leukemiasurvivor.co/2013/09/back-on-sprycel-side-effects-return.html > > Thanks, hope you all are having a great day, > Michele > > -- > [email protected] > www.LearntoBallroomDanceOnline.com > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
