Geez Peg! You got enough going on?? I think we are definitely on to something! and I believe that the lemon juice is certainly just as effective as the vinegar; and it makes total sense that you side effects would increase; my back spasms have been horrific!
It is going to be interesting to see what my next PRC will be, especially since I was off all drugs for almost 3 weeks because of the bronchitis and the PE. And out of curiosity; I am going to ask you the same question that I asked Beth: Have I asked you whether or not you have taken the antibiotics Cipro, Levaquinn or Avelox? They are usually prescribed for Sinus infections, upper respiratory issues and UTI's. They have wreaked havoc on my body! We must stayed in touch, Michele On Wed, Sep 18, 2013 at 9:22 AM, peg <[email protected]> wrote: > Hi Michelle, > > Thanks for your clarification on your dosing, it makes perfect sense now. > I am really intrigued by your stomach acid theory. I had been maintaining > PCRU for almost two years on a really low dose of Sprycel, but recently > came up trace on the last two, prompting a slight increase in dosing. At > the same time, I was developing more dietary distress after eating, almost > like a gallbladder attack, only I have no gall bladder! I discovered that > I could avoid that if I drank lemon juice before meals, which I did with my > last dose of Sprycel with catastrophic side effects...the whole body pain, > muscle spasm thing that actually reduced me to tears for about 17 hours. I > thought it was the increase in dose, even though it had been two weeks > since the increase. Now I am wondering if I simply absorbed more because > of the lemon juice and if I could go back to the lower dose with lemon and > get back to PCRU. Going to kick that thought around with my research doc > today. Thought I was going to Tasigna...but the devil you know is always > less scary than the one you don't...this might be worth testing. > > Since you asked, I have a 24 year history of MS, was diagnose with CML in > Feb 2010, Melanoma Mar 2010. Started on Gleevec, switched to Sprycel after > eight months due to life damaging side effects on Gleevec. Ended up on a > twice a week dose because side effects are so severe that I must block two > days out of my week to be bedridden. Just accidentally learned that I also > have a tumor in my abdomen that in retrospect appears to have been there > since CML diagnosis, but was omitted from scan reports. Still trying to > determine diagnostically how bad it is and if it is treatable and (like > that wasn't enough) while doing diagnostics on that they found something in > my lungs...time to stop looking, huh? ;) > > On Monday, September 16, 2013 12:36:57 PM UTC-7, Michele, Loves to Dance! > wrote: > >> Hi All, >> So, I began taking Sprycel again after pleural effusion. Taking a poll of >> what YOU think my dosage should be! Here are the facts: http://www.** >> leukemiasurvivor.co/2013/09/ba**ck-on-sprycel-side-effects-ret**urn.html<http://www.leukemiasurvivor.co/2013/09/back-on-sprycel-side-effects-return.html> >> >> Thanks, hope you all are having a great day, >> Michele >> >> -- >> Michele@**LearntoBallroomDanceOnline.com >> www.**LearntoBallroomDanceOnline.com<http://www.LearntoBallroomDanceOnline.com> >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- [email protected] www.LearntoBallroomDanceOnline.com -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
