Hi Suzieq and all of you others, Just look at what is happening with this disease. I've said this before but it is worth repeating. Within a short time CML will be a disease that will be no longer. They now have their "foot in the door" and keep on making improvements. Everything has come such a long way since my battle with this disease.
A very happy and most of all a very healthy Thanksgiving to everyone. 18's, Marty On Sun, Nov 24, 2013 at 2:57 PM, Suzieq <[email protected]> wrote: > Hello CML Survivors: > > I haven't been around in some time, but I do read and keep up with you. > This group has changed so much since I first started. So many now are on > the other drugs instead of the Gleevec. > > Well, I had my six month check up last Wednesday and my blood counts all > looked really good. Awaiting the "Biggy" test (as I call it), which will > take about 10 to 12 days. Course, with Thanksgiving thrown in there, > might take it a little longer. Who knows anymore. > > My doctor, Nurse Practitioner, & I are very interested in this BCR-ABL > test, since it will be six months since we dropped the Gleevec Dosage down > to only 100mgs. I feel so much better than I ever did at the 400mgs. I no > longer am bothered with nausea or the muscle cramps. I do still struggle > with pain, but I have a lot of arthritis. Holly, the NP, mentioned that > they've had a couple of patients to go off the Gleevec totally and so far > are doing well. I'm not sure I feel comfortable yet to do that. > > On another note, have been able to put me a little "stash" back of the > Gleevec since I started dropping the dosage. They kept using the old > prescription and would send me the dosage amount for when I was doing the > 200mgs. a day. So, I have managed to put back a years supply. I keep a > watch on the date, so to always use the older bottle up first. My husband > suggested I do this not knowing what the insurance is going to do. > > Thanks and everyone have a very Happy Thanksgiving! So ver much to be > thankful for. I am getting really close to my ten year anniversary with > CML. It will be February the 6th. Mom always reminds me that I told her > on her birthday, she'll be 85 on that day. :) > > Y'all keep look up, > Suzieq > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
