I wish I had the good news that all is well and in hand after almost a year at taking TKI - Gleevec and Dasatinib for my CML. But, my genetics results today -.63 meant no cytogenic recovery of -2.00 or the molecular at -4.00. My doctor informed me I was 'unique'... not quite the time you want to be unique as I continue to fail on the treatments and she does not think other medications will work. I do not have any mutations based on the test results. So, I was screened today for a BMT and have contacted my bothers and sisters for a donor.. I need to send their contact information to the BMT Coordinator tomorrow. I had to phone both my sisters and both brothers (I was very nervous asking them) if they would be willing. I am so fortunate to have such a wonderful family as they all consented to be tested. It will take the next 5-6 weeks to find a donor and move towards the next step. In the meantime I am at 20 mg of Diasanib every second day and to only stop the medication if my blood levels become severely rather than mildly or moderately low. So, I will be working at home if possible during these periods of low counts (especially the neutraphils) periods.
I know this can be great news as a BMT may be a cure. But, I also am very anxious as I know this is quite the process and can be high risk. I don't know of anyone who has had a Bone Marrow Transplant and any responses to others experiences and thoughts are appreciated. Hope all of you are doing well. Mar -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
