Mar, as I said before I will be here helping you through your journey. Stay cool and enjoy this holiday season. Very glad to hear that you have four possible donors. That is half the fight so your starting off on the right foot.
Please mention to your donors that by donating either their stem cells or bone marrow will not have any lasting effects on them other then knowing that one of them will be saving your life. If you should ever like to speak with me then just let me know and I will either call you or you could call me. I will send you my phone number to your private email address. 18's, "Mar"ty On Sun, Dec 22, 2013 at 2:48 PM, Mar <[email protected]> wrote: > Thank you for your support. It has taken a few days of reflection... and > living each hour to its best over the past few days. But, I am feeling > hopeful and am up to the BMT fight.. whatever may come my way. I think of > how fortunate I have been, how great the present is and what the future may > bring. It is the season to appreciate what I have... family, friends and > those around me that have been so supportive. I am almost finished > Christmas cookies, shopping and wrapping of gifts. This season holds a > special meaning for me, more than holiday seasons of the past, as I am > thankful the medication (no matter how difficult) and health professionals > have enabled me to be here to celebrate with those I love. I wish you all > a wonderful holiday season with your family and friends. > > Mar > > On Thursday, December 19, 2013 11:09:38 PM UTC-8, Mar wrote: >> >> I wish I had the good news that all is well and in hand after almost a >> year at taking TKI - Gleevec and Dasatinib for my CML. But, my genetics >> results today -.63 meant no cytogenic recovery of -2.00 or the molecular at >> -4.00. My doctor informed me I was 'unique'... not quite the time you want >> to be unique as I continue to fail on the treatments and she does not think >> other medications will work. I do not have any mutations based on the test >> results. So, I was screened today for a BMT and have contacted my bothers >> and sisters for a donor.. I need to send their contact information to the >> BMT Coordinator tomorrow. I had to phone both my sisters and both brothers >> (I was very nervous asking them) if they would be willing. I am so >> fortunate to have such a wonderful family as they all consented to be >> tested. It will take the next 5-6 weeks to find a donor and move towards >> the next step. In the meantime I am at 20 mg of Diasanib every second day >> and to only stop the medication if my blood levels become severely rather >> than mildly or moderately low. So, I will be working at home if possible >> during these periods of low counts (especially the neutraphils) periods. >> >> I know this can be great news as a BMT may be a cure. But, I also am >> very anxious as I know this is quite the process and can be high risk. I >> don't know of anyone who has had a Bone Marrow Transplant and any responses >> to others experiences and thoughts are appreciated. >> >> Hope all of you are doing well. >> >> Mar >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
