Thank you for your support. It has taken a few days of reflection... and living each hour to its best over the past few days. But, I am feeling hopeful and am up to the BMT fight.. whatever may come my way. I think of how fortunate I have been, how great the present is and what the future may bring. It is the season to appreciate what I have... family, friends and those around me that have been so supportive. I am almost finished Christmas cookies, shopping and wrapping of gifts. This season holds a special meaning for me, more than holiday seasons of the past, as I am thankful the medication (no matter how difficult) and health professionals have enabled me to be here to celebrate with those I love. I wish you all a wonderful holiday season with your family and friends.
Mar On Thursday, December 19, 2013 11:09:38 PM UTC-8, Mar wrote: > > I wish I had the good news that all is well and in hand after almost a > year at taking TKI - Gleevec and Dasatinib for my CML. But, my genetics > results today -.63 meant no cytogenic recovery of -2.00 or the molecular at > -4.00. My doctor informed me I was 'unique'... not quite the time you want > to be unique as I continue to fail on the treatments and she does not think > other medications will work. I do not have any mutations based on the test > results. So, I was screened today for a BMT and have contacted my bothers > and sisters for a donor.. I need to send their contact information to the > BMT Coordinator tomorrow. I had to phone both my sisters and both brothers > (I was very nervous asking them) if they would be willing. I am so > fortunate to have such a wonderful family as they all consented to be > tested. It will take the next 5-6 weeks to find a donor and move towards > the next step. In the meantime I am at 20 mg of Diasanib every second day > and to only stop the medication if my blood levels become severely rather > than mildly or moderately low. So, I will be working at home if possible > during these periods of low counts (especially the neutraphils) periods. > > I know this can be great news as a BMT may be a cure. But, I also am very > anxious as I know this is quite the process and can be high risk. I don't > know of anyone who has had a Bone Marrow Transplant and any responses to > others experiences and thoughts are appreciated. > > Hope all of you are doing well. > > Mar > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
