Hi Peggy and all, Thanks so much for that update. My onc at Moffitt just said do another scan in 6 months. No mention of taking me off Sprycel. Maybe those nodules are causing my pain; who knows at this point. I'll probably just take a wait and see as I usually do. Yes I am on 100 mgs Sprycel daily. I am in remission, but you never know when CML will rear its ugly head, as mine has done in the past. I have been tired as of late, but feel I have a virus or something. Sinus headaches and general weakness. I've never smoked, but I get lung problems, go figure, Good to hear from you, It's hot here in FL with dark skies. Blooms all over the citrus trees; wonderful smell; wish I could send some over the air waves. Hang in there and many blessings, Jeanie<3 In a message dated 2/24/2014 12:02:54 P.M. Eastern Standard Time, [email protected] writes:
Hi Jeanie, Bibasilar simply describes the general location in the lungs that the nodules were seen, in this case being the very bottom of the lungs. Many of the patients in the Case Report were noted to have bibasilar issues, including nodules. 3 cm is certainly large enough to do a biopsy. Mine are all under 1cm, but the pulmonary doc said once they are 1 cm or larger she can do a biopsy and see what they are. If you want answers see a pulmonary doc, but I definitely recommend providing them a copy of the Case Report. Of course the other option is to wait a few months and see if they are larger, but 3cm is fairly large, about the size of a grape. Can't remember if you are still on Sprycel, sorry, but if so, in most cases the nodules went away during a Sprycel break, and did not return when it was restarted at a lower dose. peg On Monday, February 17, 2014 9:31:51 AM UTC-8, Jeanie wrote: Hi all, Yes, they found mine in a cat scan. Here is a summary of my cat scan CT A/P w/Contrast (Abdomen Pelvis) There is no suspicious lymphadenopathy or retroperitoneal mass identified. There is aortoiliac atherosclerotic disease without abdominal aortic aneurysm. There is no evidence of IVC thrombosis. The bladder, uterus, and adnexa are unremarkable. There are degenerative changes of the spine and boney pelvis without destructive osseous lesion or acute fracture deformity identified. There is also slight lower lumbar dextroscoliosis. Impression 1. No lymphadenopathy, soft tissue mass, or splenomegaly identified. 2. Nonspecific 2-3 mm bibasilar lung nodules. 3. Inderminant 7 mm hetergenous or possible small enhancing nodule the left kidney' follow up imaging is recommended. The liver, pancreas, spleen and adrnal glands are unremarkable. Note is made of a duodenal diverticulum in the region of the head of the pancreas. And some colonic diverticulosis without evidence of diverticulitis. (acute) In a message dated 2/14/2014 11:18:41 A.M. Eastern Standard Time, [email protected]_ (javascript:) writes: Folks, just for clarification, the type of lung abnormalities seen in this report, and what they think I have, are NOT plural effusion. Plural effusion is fluid outside the lungs, and can be spotted on x-ray at all but the earliest stages. The type of lung abnormalities referred to in the report are inside the lungs and can only be seen on CT. They appear as what they call Ground Glass Nodules and other nodule type lesions that give the appearance of lung cancer. You would not see this on x-ray, at least not in the small lesion stage. Mine are diffuse through parts of both lungs but are all under the 1cm size required to do a biopsy. I have also had other symptoms, like shortness of breath, that may be attributable to this. To the best of my knowledge the prescribing information on Sprycel does not make any mention of this type of lung problem. Once again, this is not the plural effusion described in the prescribing literature. My guess is that it is found only if a CT is done for some other purpose, and if that is the case and you are still on Sprycel I would encourage you to take this report to a pulmonary doctor so they can be aware that this type of lesions have been seen with Sprycel usage. Would much rather think that this is what I have rather than lung cancer!! On Wednesday, February 12, 2014 9:32:53 AM UTC-8, peg wrote: Hey Jeanie, I am the one the mentioned lung lesions. I found an obscure report from the clinicals on Sprycel where they found this as an auto-immune reaction to Sprycel, that in most folks cleared once Sprycel was stopped. This is what my pulmonary doc thinks is what they are seeing in my lungs. I tried attaching the report to this post but if it doesn't work (they dragged me into this century kicking and screaming) if you or anyone else emails me directly I can send it to you by email. peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (javascript:) To unsubscribe from this group, send email to _CMLHope-u...@CMLHope-u...@<WB_ (javascript:) For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@<WB_ (javascript:) . 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