Hi Peg and thanks again,
I was wondering why he never addressed the lung lesion anymore than he  
did.  He is the head of the senior Adult Onc at Moffitt Cancer Center, and  can 
take care of most anything that would arise in my health situation.
I also told my PCD doctor about it and showed him the results, and he never 
 made any comment on it either.
I'll take the next scan and see if it has grown, and go from there, unless  
I develop some lung problems.
I too have had some type of flu.  It started with throwing up, and  stomach 
pains.  I have felt bad ever since.  I am some better  now.  I had a double 
flu shot, but they don't take care of all flus.
Thanks again and keep us posted on your progress.
Jeanie<3
 
 
In a message dated 3/7/2014 12:32:06 P.M. Eastern Standard Time,  
[email protected] writes:

Jeanie,

Sorry, I have been MIA for over a week, came down  with a particularly 
nasty virus that I can't seem to shake. 

Six months  must seem like a scarey long time when something like this is 
found! I know  that each doctor handles stuff like this differently, so I can 
only address  this from what my docs are doing with it.  

My onc was also rather  blase, but I have found that this is where I feel 
the most parted out...kind  of like a side of beef.  Since her primary 
responsibility is for my CML,  she has offered little input on other lesions, 
like 
the cancer in my abdomen  and the unknown lesions in my lungs.  I have 
found I am rather on my own  for other more appropriate opinions.  I have the 
luxury that folks with  an HMO don't...I can self refer to any doctor I would 
like for opinions or  treatments.  After an exhaustive search I did just 
find a great surgeon  with a really good plan for the abdominal tumor.  

In regard to  the lung lesions, I already had a pulmonary doc that I love, 
so she was my  first stop when the lesions showed up.  For me, the CT's are 
being done  every 2 months (although this is also to monitor the abdominal 
tumor) but I am  certain she would change to six months only when she is 
comfortable that no  negative change is being seen over an extended period, in 
other words, if no  change is seen for two or three consecutive scans done 2 
or 3 months apart,  then it would be reasonable to go six months between 
scans.  

I  also know that she said if they don't go away, and start to grow, she 
can get  a biopsy as soon as any one of the lesions is 1cm or larger...right 
now they  are all just under 1cm, or less.  I know yours are larger than 
that,  which for my pulmonary doc would indicate a biopsy, not a watch and  
wait.  

My recommendation in these cases always is a second  opinion.  Even folks 
on HMO's who can't self refer are entitled to that.  If you want more answers 
now, be patient active and make some noise. Our  bodies, our choice!

Fight on,
peg   







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