Hi Jeanie, I always worry about my tests, I always try to get them on a Wednesday that's how I first started on a Wednesday don't want to change that. Now it's only once a year I will be flying into Chicago May 7th, my son will pick Grace and myself up and take us downtown Chicago for my blood work, see the Doctor and pick up my Med's. We are going to spend 4 days in the area have to go see Grace's boys and grand kids to, etc. Will fly back on the 12th. My Doctor told me that if it makes me fell better I can get my blood work 6 month later here in Fort Myers and send the results back to her witch I plan to do. I just can't go a full year without knowing what's going on with my counts. I do worry a lot, just can't help myself, been that way all my life. It's a hard habit to stop. I hope the sun come's up tomorrow. See what I mean. All of us CML and care takers due take care of yourself's. greenie In a message dated 3/13/2014 5:08:21 P.M. Eastern Daylight Time, [email protected] writes:
So happy that Gleevec still works for you Greenie. Yes, I think we all are in awe of how the years have passed and where we are now. I celebrated my 10th year the first of the year. Dx in Jan started Gleevec in Feb. Then on Tasi and now on Sprycel. Hanging in there still, and as Millie says, one day at a time. Well, I do worry about what my counts will be when I get my next test. I'm just a worrier so that's just me. Blessings, Jeanie<3 In a message dated 3/12/2014 8:03:37 A.M. Eastern Daylight Time, [email protected] writes: Hi Millie, Me to 16 years, been on Gleevec 14 years 3 months. That was a fast 16 years. I have to pinch myself to my sure I'm still here. greenie In a message dated 3/12/2014 12:46:55 A.M. Eastern Daylight Time, [email protected] writes: I'm going on 16 years with CML. I think it is anyway. I have never kept track of dates and numbers as I leave that up to my Oncologist and he does a great job :>). I am just glad to be here with all of you and be able to share our experiences. It does help to know how everyone else is dealing with their CML. We have all had such different results. Tasigna was the only thing that put me into remission, and since being diagnosed with Liver disease my Tasigna was cut off completely for over a month and then I was put on a half dose which has kept me in remission. I don't think about what the numbers are going to be next as I do practice what I preach, and live one day at a time...doing the best I'm able to do. I think if I would dwell on these things to much I'd drive myself crazy, and so I don't. I try to live my life the best that I can and doing things that help me deal with my pain from Arthritis, Polymyalgia, and compressed disks that cause the pain. My medical issues are many and to sit and worry all of the time wouldn't be a good thing and certainly wouldn't help. I'm happy that you are still doing so well, and hope that it will continue, so keep up your messages and let us know how you're doing. Hugs, Millie ----- Original Message ----- From: Richard H <[email protected]> To: [email protected] Sent: Wed, 12 Mar 2014 00:13:18 -0400 (EDT) Subject: [CMLHope] Aniversery 13 I have passed my 13th year with CML. Monday I will meet with my ONC for the results on my blood tests. My CBC was eactly where it should be so I am praying for good results. About a month ago I noticed a spring in my steps to coffee club and increased energy. I will report the findings after I get them. I am praying for all, and so glad Marty is feeling better and able to join on line. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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