Hi Greenie...Aren't we lucky to be here with little or no side effects. I was on Gleevec for a long time, but it stopped working and the doctor had doubled my dosage. So far, Tasigna is working and I pray it stays that way. Hugs, Millie ----- Original Message ----- From: [email protected] To: [email protected] Sent: Wed, 12 Mar 2014 08:03:29 -0400 (EDT) Subject: Re: [CMLHope] Aniversery 13
Hi Millie, Me to 16 years, been on Gleevec 14 years 3 months. That was a fast 16 years. I have to pinch myself to my sure I'm still here. greenie In a message dated 3/12/2014 12:46:55 A.M. Eastern Daylight Time, [email protected] writes: I'm going on 16 years with CML. I think it is anyway. I have never kept track of dates and numbers as I leave that up to my Oncologist and he does a great job :>). I am just glad to be here with all of you and be able to share our experiences. It does help to know how everyone else is dealing with their CML. We have all had such different results. Tasigna was the only thing that put me into remission, and since being diagnosed with Liver disease my Tasigna was cut off completely for over a month and then I was put on a half dose which has kept me in remission. I don't think about what the numbers are going to be next as I do practice what I preach, and live one day at a time...doing the best I'm able to do. I think if I would dwell on these things to much I'd drive myself crazy, and so I don't. I try to live my life the best that I can and doing things that help me deal with my pain from Arthritis, Polymyalgia, and compressed disks that cause the pain. My medical issues are many and to sit and worry all of the time wouldn't be a good thing and certainly wouldn't help. I'm happy that you are still doing so well, and hope that it will continue, so keep up your messages and let us know how you're doing. Hugs, Millie ----- Original Message ----- From: Richard H <[email protected]> To: [email protected] Sent: Wed, 12 Mar 2014 00:13:18 -0400 (EDT) Subject: [CMLHope] Aniversery 13 I have passed my 13th year with CML. Monday I will meet with my ONC for the results on my blood tests. My CBC was eactly where it should be so I am praying for good results. About a month ago I noticed a spring in my steps to coffee club and increased energy. I will report the findings after I get them. I am praying for all, and so glad Marty is feeling better and able to join on line. Richard H. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
